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Old 07-12-2008, 08:20 PM #1
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Quote:
Originally Posted by Snoopy View Post
Cheryl, Were you getting sick (infections, viruses, ect.) when you were still getting the vaccine or did you start getting sick after you stopped getting the vaccine?

Have you had more problems with your MS during the time you were getting the vaccine or after?

I know there is no way to know, right now, if you were getting the real thing or not. Just curious
I have an exacerbation in August, had my last vaccine on Sept 21. Other than that, I did fairly well from the time I started the shots in March until the exacerbation in August and it was a pretty bad one. I was down, and I mean down, for almost a month. Then I got that horrible sinus infection mid-December that after 2 rounds of antibiotics turned into a staph infection in my right sinus cavity.

Then another flare in April.

The months that I was on the vaccine, I'd say I was pretty stable...fewer complaints other than the fatigue. I had to increase the provigil and then after the August flare, I got steadily worse. Fatigue and pain.

No colds or viruses that I can remember during the vaccine period. Just after I stopped in September and since. I've had 2 exacerbations since I stopped...one was infection induced (sinus infection) and the other was a regular old exacerbation (April).

To answer your question about worse during or after? Definitely after. Back to the pre-trial me...only a bit worse...pain level is higher and definitely the fatigue level is higher. 400 mg of provigil does nothing. I take it and then I crash in the afternoon. So I am now just taking 200 so I don't have that afternoon crash. That's has been horrible.

Doc put me back on Sinemet for the spasticity. Added that to the Soma, along with Klonopin. Norco and/or Vicodin as needed. Seems to be a good cocktail as I have to function during the day. Sinemet doesn't make me drowsy. The Soma and Klonopin do. I found out that 1.5mg of Klonopin is 3 times the normal dose!! Ms. drug lightweight is maxed out on that one and it's not touching the RLS...Requip did nothing...

Long answer to a short question...
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Old 07-12-2008, 09:10 PM #2
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Awwww, Cheryl, darn it....I hope you get back to feeling better soon..
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Old 07-13-2008, 02:16 PM #3
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Do NOT make me march up to your MRTC center and bang on it to get it to produce them cells!

They did it before and they can do it again! Smarten up over there! She needs those MRTC's and it's your job to produce when called upon so GET ON IT!!!

Seriously Cheryl, this just sucks.

I am praying that you get good results next time they test.
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