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#11 | |||
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Wisest Elder Ever
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I'm sorry you're dealing with all of this, Sarah. It's bad enough when you have a dx of MS...but to be told it's not neurological in nature is just ridiculous. If it were me I think I'd look for a new Neuro.
Were your MRI's just of the brain or were they of the brain and cervical spine? Lots of ![]() ![]() ![]()
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#12 | |||
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In Remembrance
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Quote:
DITTO!!!! Hugs for Sarah.. ![]() ![]() ![]() ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#13 | |||
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Elder
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Hi Sarah,
Sorry about all the symptoms you've been having. ![]() I hope the doctor can help Sweetie. ![]()
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#14 | |||
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Grand Magnate
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![]() ![]() ![]() My numbness is loss of sensation in the right side, which gets worse at night. I've almost fallen off the bed before because I couldn't tell where the end of it was. ![]()
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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#15 | |||
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Member
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I know how you feel and I also don't have MS, but everytime I fall my legs go numb first, like they are not there at all! I am trying to look at bright side...I must have had 2,000 nicks on both legs from shaving (cheap razor) and went into ocean and felt hardly a sting when it should have hurt like hell!!
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day! Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled! |
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#16 | |||
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Elder
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Sweet Sarah,
Gosh, I feel so bad for you...you tried to just ignore it all, I know. And you work FT, and take care of the kids, all the while dealing with these sxs. It's time for you to go somewhere to get this thing dxd...maybe Mayo? Prayers going out for you, girl...take care of yourself! ![]()
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#17 | |||
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Magnate
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Thank you all,
I worked today, but came home early...couldnt hack it...with the numbness feeling....hands werent working well...so covered me and came home...slept a few hours....doesnt help but doesnt hurt hehe... Well, we have done the find a new neuro three times now...so I feel I am like a neuro hater.hehehee....as for mayo would love to...just not sure I want to invest once again in travels...and not be figured out... ![]() if this continues I will hve to do something, hugsss,sarah |
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#18 | |||
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Member
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Man, I am angry FOR YOU !!! OK, how bout showing your PCP all that you are going through and have your PCP call a Neuro?? ANY neuro? At least your PCP could order the right MRI's.
How much more do you need before someone does something??? Geezzzz HUGS my dear one. Are you in or near a big city? I know you're in Michigan. I feel so badly for you.... Its ok you came home from work, you needed too. Maybe there just IS too much stress... a manager of a fast food place??? Insanity Keep us posted and let us know... but SOME ONE SOMEWHERE MUST KNOW SOMETHING!!!! Much love and caring thoughts my dear Jan |
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"Thanks for this!" says: | sabimax (07-15-2008) |
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#19 | |||
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Magnate
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thanks again all
Thanks Jan, I wuv ya... heading to work..things are feeling less numb like..but my back is killing me now..achey...rainy morning..so who knows ...should be a wierd day again... anyhow...thanks all...when in to my pcp..I will have a long talk with her again about sxs..and who maybe I should see this time.... I live in small town MI...and running out of neuros...even have travelled and found not so good neuros...hehe hugss,sarah |
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#20 | |||
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Member
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My dear Sarah... YESSS Have your PCP call a neuro any neuro, and tell them all that you are going through. And/or... try a Rhuemie...they are amazing at diagnosing too.. or ruling out.
I wish you could see my nutritionist. He help give me relief, much so, after everyone else did not know what to call "it" or how to treat "it" except to add more and more meds. I luv you too!! Hey.. Im half way up Wisconsin, in Algoma (just south of Green Bay) I will send you loving thoughts that give you ANSWERS across Lake MIchigan. Wish I could help you out more Jan |
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