Thanks Cherie, Sally and Frank.

I didn't know I was supposed to drink a full glass of water with my capsule????

I'll do that tonight for sure.

Nope, I didn't make any other drug changes.

I picked up that tip somewhere, and added into my "risk assessment" document for my doc, but then promptly forgot. After a couple of weeks of nausea, I re-read the instructions and saw to take it with water. Never had a problem after that night.

I take liquid (although the instructions were for any LDN), and I think it made a difference especially for that method. It might not make any difference for the capsule, even though they recommend it.

I forgot to mention throughout this thread (although Sally may have) that LDN only stays in our system for about 18 hrs, so if we ever have to go off for any reason, we are "clean" by the next day. This is also the reason that symptoms that LDN helps for, will start creeping back within a few days.

Also, did any of us mention to take the LDN after 9:00 pm (or is it 11:00, Sally?), cause it works with our sleep patterns? Most people who've done the research know not to take it till late already (and I take it after midnight, as a habit), but for those who may have forgotten . . .

Cherie

Yes, Cherie, thanks for remembering. Take your LDN before bedtime....preferredly after 9pm and before 1am. The endorphins are replenished after midnight...in the wee hours, usually while you sleep.

ok so I guess something is working, this was my morning

i cleaned out the pond, filled bird feeders,help garbage man with garbage, went to docs then went to store walked to pharmacy then to back of store got some stuff bought that stuff, then back to pharmacy and did it all with out a cane or a cart, i will be honest towards the end i got a bit sore and tense, but wowser, its a step in right direction so am gonna keep hoping its the new meds we shall see

thank you thank you thank you thank you

It sounds like you're one of the lucky ones, Frank. Wowser, is right!!

Don't any of you others get discouraged. LDN will work for
you too, just at different ways and speeds. RRMSers, usually
get the best benefit from all MS Meds. That's because they
usually don't, yet, have permanent nerve damage and are
still able to re-myelinate.


I told you that, when I started on LDN, I was already SPMS and
so, I didn't get right up and throw away my cane. I did,
however, feel stronger, less fatigued and dizzyness, when
closing eyes, was gone.....and I felt Great!! And....my MS
disability has not progressed in the 5+ yrs, I've taken it.
No new symptoms and no exacerbations.

Remember.....To stop or slow the progression of disability is
the main benefit of LDN. It is not a cure, although, to a lucky few, it may seem that way.. ...Keep the faith...

Good wishes too all..

cane isnt going anywhere too soon, if I had one more stop i would of needed it, but it was nice to get a few things done before i needed the cane, as to my normal, wake up needing it yet still have those things to do. so i am glad for today lets see how tomorrow goes,

peace

good morning ok I have seen more than few on LDN post they have vivid dreams, I cant recall what it was about, but wowsers. lol i probably looked my one dog that use to dream he was running lol I noticed I seem to be getting to sleep earlier than before, whether its me or the med either way sleep is a good thing, so coolieO's

happy saturday

I don't have my LDN yet but I will soon.....

That's the one side effect that sort of scares me...the dreams. While I don't mind vivid good dreams it's the scary ones that disturb me. I just hope I don't have any of those to contend with. I've done my time with having bad dreams..don't want any of that anymore!

They aren't normally scary dreams, Kelly, just VIVID ones. When I wake up, especially after my afternoon nap, I swear I've lived another life for the last three hours. It's like watching a movie, but more like an action not horror one. I don't get those dreams at night though.

Frank, something else I forgot to mention . . . DO NOT OVERDO THINGS, just because you can.

I met this lady a few months ago who started using LDN, then got back into the gym within a few weeks. She began doing these lively neck gyrating exercises (can't remember; took up trampoline or something like that), and sure enough, she jarred her spinal lesions, which SET OFF an attack.

If you are one of the lucky ones where it helps symptoms (which is a "bonus", not the "goal" with LDN), then it is easy to push yourself too far. The MonSter is still lurking, and the LDN will not protect us from ourselves.

PACE YOUR NEW-FOUND ENERGY very carefully, especially in the beginning. You will learn new limits, but you STILL have them.

Cherie

Hey Frank! I'll buy your plane ticket if you will come and clean MY house!!!! I don't have that surge of energy, darnit! But sleep is going better -- I caught 8 hours last night and didn't have any memorable dreams.

Kelly, like Cherie said, the dreams are vivid and somewhat disturbing b/c of content (for me, anyway), but not up there with nightmares.

I'm close to 2 weeks. Doing okay now after I got the first week behind me. Not so lucky as Frank! Now if these allergies would leave me alone. ACHOO!!!

Have a great weekend, everyone!