This was my experience as well. I did notice immediate improvement. But the broad scope of it didn't hit me until later. I noticed the spasms improve immediatly. But later I realized that the burning pain was also gone. The fatigue improved also until recently. Also the numbness improved as well. I was able to walk and do things again.

When I started getting sick this year I was terrified that the LDN was not working anymore. But then I missed one dose in July and found out that it was definitely working. Missing it induced serious pain, spasms, etc. After 9 months I am hopeful it will continue working this well.

Whaaat? Missing one lousy dose will do that to you?

*gluing reminder to my pillowcase*

It could just be me.... but yes it did. (Anyone else weird like me??)

When I flew to Minnesota in February I wasn't able to put it in the fridge...and I wasn't doing well by the time we got back. But actually missing a dose was totally different. Now there were other factors (very little sleep, uncomfortable hospital furniture, a tad bit of STRESS) and it may not have been all the missed dose... but either way, I'm not risking it again.

Oh, and I don't forget because I set the alarm on my cell phone. It automatically goes off every night at 11:30pm to remind me if I haven't taken it by then.

i have been too afraid of missing a dose so I have not had that happen to me as of yet

hope everyones week is going well, I have been very over tired not sleeping well plus the last week or so was a bit hectic

I have missed a day of LDN, here and there and it didn't seem to bother me. It's when I missed two days, because I was out, temporarily, that it hit me..

You can believe that I haven't made that mistake again..

Feel better, Frank.

Frank, you've had so much going on lately that it's to be expected that you'll feel overly tired. You need some rest!!

thats what I am thinking, cause while deb was in hospital thats where they wanted my kiester too. so instead she had to go in because of her new job, and had to get back asap. so it will probably take me a few more days to be back to my spastic self

You have made a lot of changes in a very short period, Frank. Reducing some meds, the things going on at home, etc. I wonder how you feel you would have coped with those things if you hadn't got on the LDN, under the same circumstances?

Please feel free to disagree . . . just a thought.

Cherie

I am on the liquid too, and my pharmacist prepares a month at a time. The liquid has a much shorter shelf life . . .

I can tell by the 3rd week that the LDN is not as potent. Most times I try to refill it every three weeks, but there have been times I've pushed that out to the end. I notice the difference as soon as I get on the fresh batch.

I have missed a few days, on a couple of occasions, and it's not pretty. In fact, for a long while I was measuring only 2.75 mg accidentally, and that was at the same time as all the infections were going on in my body, and my spinal lesions were acting up. If my doc hadn't eventually asked me how I was measuring it, coincidentally, I'd never have thought to re-measure it myself. I'd still be measuring the wrong amount. DUH!

After a person stabilizes, it's a fun test to not take it for a day or two, just to see what a difference it is making. We tend to take things for granted after a while.

Cherie

I'm not sure why the pharmacist does this. I mix my own and I use the 50mg pills. This makes about 2 weeks worth. (Give or take a little.) It is still fine by the end of that time. But, any longer and it's not.

I would ask him to only make two weeks at a time but if your dose is lower he may already be using that 50mg pill. He could always cut it in half and do 25ml at a time. I did that for the first few months until I decided to see if the 50 would last. It did.

Oh and I can sympathize Cherie, I've got an infection right now and it's not pretty either. Talk about pain... *sigh*