He is not using the 50 mg pill to make my compound, he is using the PURE Naltrexone powder, without fillers. I am sensitive to several meds AND fillers, so we went with the straight drug compounded in distilled water w/ flavoring.

I am good till the end of the third week, and the "expiry date" on the bottle actually lists the date that is 21 days after I've filled it. It is my own fault that I sometimes use the fourth week, but that has saved me a lot of times too. I am a major procrastinator, so the fourth weeks is left there as a back-up for my incompetance. It still works, just not as well.

Hope you are getting antibiotics for your infection. Infection is BAD (at least for me).

Cherie

BTW, the major supplier of liquid LDN in the UK said they did some testing, and it can "supposedly" be kept out of the fridge for 56 days, and does not expire IN the fridge for 100 days (something like that anyway).

I actually wrote him a letter and told him that that is NOT my experience at all.

.... They did the scientific "tests" though ....

Cherie

I am 5 days into taking LDN. I have learned from Frank’s experience (thanks, Frank ), and I have not really physically pushed myself. Today, however, I went to the grocery store unaided. I take my power chair for a trip like this, so I can only buy as much as I can fit in one of those little hand baskets. Usually such an outing wipes me out and by the time I get home and get the food put away I can count on being a mess of tremors and achy spasms. Today it was different. I am just as wiped out as usual, but the shaky, tremory feeling is strangely reduced. Though I feel weak as usual, my movements seem oddly smooth. What a nice change!

Will it continue? Who knows. Is it the LDN? Perhaps time will tell.

You should talk to him about making 2 weeks worth, since he's using powder it shouldn't be a problem for him to do that. A few more trips to the pharmacy, but worth it if it works well all the time.

And, I'm going to go in tomorrow for an antibotic shot. Not to worry.

Cherie I know what you mean that has been in back of my mind too, am trying to be positive and hope it is just the stress of last couple weeks,

I myself have to work harder on pacing I tend to over do it a lot, its just so dang hard to stop when I am getting something done for once, that's what i have to realize, is it will be finished sooner if I don't push so hard and just do x amount each day,

today wasn't too bad considering it started with an uncomfortable ex ray table and two and half hours of MRI's, I did not nap, I did spend a lot of time fixing a laptop so that was productive,

not sure if this over doing it is a sort of denial issue still or a foolish pride issue either way I am slowly figuring it out, its counter productive

hope you all have a pleasant morning

Are you of the impression that liquid LDN only has a two week shelf life, or is that your personal experience? Have you tried 3 or 4 weeks of prepared liquid and it didn't work for you after 2 weeks?

I know 3 weeks is fine for me, I just have to be more disciplined to not use that 4th week.

If I tried to move to 2 weeks though, I'd have MANY days without the drug. My pharmacy is only open till 5:30 daily, 1:00 on Saturdays, not on Sundays or holidays. Then, they only make the LDN up in the afternoon, and I have to give them a min of 4 hrs before the afternoon that I need it. It's not very convenient for someone unorganized like me, so I do end up using part of the 4th week sometimes. I really wouldn't consider changing that arrangement because of all the circumstances.

Good luck on the shot. I've never heard of an antibiotic shot??? What is that? Is it a one time treatment or ?

Cherie

You remind me of my friend in SC . . . he pushes himself so hard that I'd be afraid for him to get on LDN. This drug really does NOT protect us from ourselves.

You really do have to learn to pace yourself, Frank. If LDN proves effective for you (and you'll never know that if you keep over-doing things), then this benefit will last forever. I remember pushing myself in beginning too, cause I was so afraid the energy wasn't going to be there next week or next month. I am several years into it now though, and I know tomorrow will come and the extra jobs will "keep".

Cherie

I've taken LDN (1.5 mg) for three days now and I like it! I've felt better and have not needed a nap in the afternoon. Not sure if this is from me stopping the Neurontin and Baclofen or just extra energy from the LDN. I really don't care which it is, though! I'm just happy to feel better!

I'm not doing too much. Sort of trying to pace myself. Hope it continues!

Yes this has been my experience but you have to remember I don't have as much wiggle room. I am using 50mg pills. So I make 50ml at a time. 100ml would be 22 days worth and that is too much. 75ml would be 16 days and I figured it's just easier to make it as fresh as possible. Plus the bottle I use for it is only 50ml.

I'm making it myself though, which is different I know.

GREAT, Kelly . . . and that's only on 1.5mg.

You've managed to ditch 2 fairly potent drugs, picked up one light one, and you are doing well . . . it's all good.

Cherie