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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   LDN Information & Check In (https://www.neurotalk.org/multiple-sclerosis/50240-ldn-information-check.html)

lady_express_44 08-31-2008 02:11 PM
Quote:
Originally Posted by weegot5kiz (Post 358610)
I too have had trouble with sleep but also had trouble prior to LDN, I do dream and or am remembering dreams now. the spasms have settled down and I am not back on the klonopin:yahoo: my appetite is either being effected by LDN or because I stopped the other three meds, and I am losing weight:yahoo: my nails are growing like weeds,

still have the muscle tightness by end of day on my left side but i do seem to be stronger physically and mentally, as for these dreams lol yowsers,

my lack of vision still seems to come as I get tired, as do the muscle pains and spasms, but during the day I am noticing, not much is happening, so I must stride to watch overdoing it and perhaps i wont have those other effects as I tire, towards the end of a day

Happy Labor Day all
Cool, Frank. Looks like you are learning how to get the most out of this.

And, it's early days yet . . .

(BTW, a lot of guys can't get over 3.0 mg for some reason . . . not sure if I mentioned that before.)

Cherie

marion06095 08-31-2008 05:49 PM
I’ve been on 3mg of LDN for a week now. And, by the way, my dreams are normal. I often remember them, so perhaps I already dream vividly.

PolarExpress 08-31-2008 10:35 PM
I've been taking LDN for nearly three years..I can't honestly say it's made a difference in progression, but it has helped with symptoms, and that's all good for me!

lady_express_44 09-01-2008 12:38 AM
Quote:
Originally Posted by marion06095 (Post 358760)
I’ve been on 3mg of LDN for a week now. And, by the way, my dreams are normal. I often remember them, so perhaps I already dream vividly.
Oh yeah, I forgot Marion. That explains why you might be seeing some improvement in trembling, etc. I continued to improve in various small ways over a period of about 9 mo - 1 year (after moving up to 4.5 mg after 6 mo).

Cherie

lady_express_44 09-01-2008 12:40 AM
Quote:
Originally Posted by PolarExpress (Post 358933)
I've been taking LDN for nearly three years..I can't honestly say it's made a difference in progression, but it has helped with symptoms, and that's all good for me!
I'm losing track of people's stories now, Polar. :) You are on 4.5mg, right?

Have you had any attacks . . . are you RRMS, SPMS, or PPMS? How long have you had MS?

How have you progressed over this 3 yrs, if you don't mind me asking?

Cherie

marion06095 09-01-2008 08:04 AM
I have a question for those of you who have been on LDN for a while: It is said that my fingernails may grow faster. In your experience, will the faster growing nails be stronger than before, or is it going to be the same splitting, peeling, paper-thin nails just splitting and peeling faster? Inquiring minds want to know.

SallyC 09-01-2008 11:48 AM
Quote:
Originally Posted by marion06095 (Post 359088)
I have a question for those of you who have been on LDN for a while: It is said that my fingernails may grow faster. In your experience, will the faster growing nails be stronger than before, or is it going to be the same splitting, peeling, paper-thin nails just splitting and peeling faster? Inquiring minds want to know.
I noticed them stronger..:)

Kitty 09-01-2008 12:08 PM
Quote:
Originally Posted by SallyC (Post 359210)
I noticed them stronger..:)
Me, too, and I've only been on it a week!!

Tree55 09-01-2008 08:24 PM
I wanted to find out more about LDN since I recently started it and found this thread. I started LDN 06/19/08 at 3.0. Bumped up to 4.5 on 07/24/08 and am presently still on 4.5. It has helped my foot drop to some degree as well as bladder problems.

I did notice I'm feeling fatigue since starting it which I didn't experience before. Anyone else experience this? I also have balance problems. Anyone find the LDN has helped balance issues? I know it is primarily used to stop progression and symptom relief is a bonus.

I am encouraged by what I read here and hope more people with MS can persuade their docs to prescribe LDN.

PolarExpress 09-01-2008 09:30 PM
Quote:
Originally Posted by lady_express_44 (Post 358962)
I'm losing track of people's stories now, Polar. :) You are on 4.5mg, right?

Have you had any attacks . . . are you RRMS, SPMS, or PPMS? How long have you had MS?

How have you progressed over this 3 yrs, if you don't mind me asking?

Cherie
4mg is my limit, I've found..My bladder starts doing somersaults when I try 4.5..I was dx'd as PPMS, the progression is mostly cognitive, with numbness in hands and buzzing in both legs..Balance has become more of a problem, slowly but steadily..Still walking though! I had an MRI a couple months ago, and it showed new and active brain lesions..My thyroid went completely wonky on me at about the same time (hypothyroid), going from 1.5 to 19.8 in a matter of a few months..All this sounds bad, but considering alternatives, I'm happy with where I'm at!


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