I increased my dosage from 1.5 mg to 3.0 mg last night. I went to bed at 9 PM and slept like a baby till 4 AM!! I haven't slept that well in quite a while.

Could be that I was just exhausted after several days of fitful sleep. Or it could be the LDN. I don't know...don't care, either!! Just happy I got some much needed recooperative sleep! :) I'll take it whenever I can get it!

Hi Tree...Long time no see...Welcome to NeuroTalk..:)

And...Welcome to the LDN club..:D Happy to hear it is helping you..:)

As far as your fatigue.....I am the complete opposite, as it made my debilitating MS fatigue vanish. However, I still do have heat fatigue when the weather is yucky hot. I'm sure it's not the LDN causing your fatigue at least, I hope not. The same for balance...mine improved a lot.

It sounds like you may be having, what I call, a heat flare. Heat can bring on the fatigue, which can bring on the balance problems. Try to stay as cool as you are able and keep your stress level down. Take cool showers.

Nice to see you..:hug:

YaHoo Kell, I slept like a baby on 3mg too, while others complained of some insomnia at that dose. I think it's the, feeling of well being, that helped me to sleep. Anyway like you say, who gives a #$%* , as long as it works..LOL!!

:hug:

Thanks, Sally, for your insight and your welcoming me to NeuroTalk and LDN club. I've read a number of your posts regarding LDN and your experience w/it over the years. You have been most helpful.

I read about how LDN has helped others w/fatigue and balance. Balance has been an issue for quite some time w/me. This summer was the first time heat has bothered me. The cooler weather is around the corner. I should then be able to tell if indeed it was a "heat flare."

By the way, I noticed my nails growing faster and stronger too.

howdy Tree:Wave-Hello:, welcome to Neuro Talk, I too am opposite I sleep better now, too

congrats Kelly, :Excited:

for fact i am doing well enough to stop taking my speeder(provigil) each day :yahoo:, again Tree, welcome to the club,

ladies:Tip-Hat:

howdy all, you know what I noticed tonight, I cooked on the grill the last two nights got all of dinner ready prep and all, and stayed outside and it was really a bit warm its was 93-95the last few days so it was warm out and i was next to the grill, am pretty sure it was my intellect that saved me:eek: I went and sat down on the swing and rocked while i waited watered some plants, and I am doing ok, not fantastic but am doing ok. I will take it, cause i am not wiped out, like my normal had become,

muy beuno

good evening everyone

I was dizzy today for about 2 hours. I've been on the 3 mg. dose for 1 week now.

As far as sleep, it varies from night to night. I may wake up 5 times, but I go right back to sleep.

Last night I only woke up twice. :)

I will post a list tomorrow that I got from the pharmacist. I told him about my dizziness and so he looked up Naltrexone possible side-effects. There must be 3 dozen or so!!! But, as you know, everything that anyone has experienced and reported must be listed.

Thanks for the welcome. I'll be dropping in to see how all are doing on LDN.

Hi, and :welcome_sign:, Tree.

Fatigue has been an issue for me long time before I started LDN, and I had been on an antidepressant (to combat fatigue) for about a year prior to starting on LDN. I didn't notice much of a difference either way when I started on LDN, but I did notice a big improvement in my fatigue level when I managed to ditch the antidepressant a year later.

I wall-walked when I went on LDN, and there was considerable improvement in this area. That was not something that changed immediately, but over time (about 9 mo - 1 yr), I noticed I had stopped wall-walking and wasn't thinking about every step on uneven surfaces.

Balance is something that comes and goes with me, especially with heat, but it's never again reached the point I was at pre-LDN.

Cherie

Are your thyroid issues thought to be connected to the MS, or is that seperate? Is the balance related to the MS too, or could that be from the hypothyroid? Are they suggesting that the LDN may have contributed in any way to the hypothyroid? :confused:

I jumped ahead in your posting a little . . . but how is it that you have enhancing lesions when you are PPMS? Isn't that rare? Do you have relapses too, ie. are you perhaps PRMS instead?

Did you have a spinal lesion or TM-type attack prior to or since going on LDN?

Cherie