I Think it's keeping me walking as "well" as I am. I really don't know... but I started taking B1's when I went camping in the summer months because people told me B1 can keep mosquitoes from eating you alive. So I figured why not... I used to start taking it a day or two before heading out and then stopped when I got home.

Well, in July 2005 I went for over 2 weeks. And on the 14th day suddenly my legs felt Different - better - I stopped using a cane to walk the hill we were on. I didn't know what changed.. but then it hit me, MAYBE it was the B1.

So I started taking B1 100 MG with my LDN, just so I knew I took it each day. Last March (07) I was running out, so I bought Super B Complex, it had 100 MG B1, they were expensive and then I moved. I couldn't find them, still haven't found them! So I let them run out and within 3 days of not taking them, my legs started feeling weak (mainly my left one). So we stopped at a Vitamin Shoppe and I bought B1s. 2 days later I was ok again.

So I don't know if it really helps or I Just think it does, but I've been taking B1 100 or a Super B Complex with 100 MG B1 in it, ever since.

Whatever helps......it sounds like B1 works for you. To think you were taking it to repel mosquitoes and then to discover it helped your legs. Awesome.

My allergies/sinuses have been giving me heck this weekend. Sneezing and stuffed up head - makes me very dizzy.

Can we take OTC meds like Advil Sinus or Zyrtec with LDN? I'm assuming we can because I've taken Benedryl with no problem.

Thanks!

I haven't heard anything against taking allergy meds with LDN, Kell. Go for it.. .... Except, do allergy meds sometimes keep you up at night???

Only the non-drowsy kind...I have to take that early in the day.

I'll try some Benadryl tonight. If nothing else it should help with my back itching!

I can’t believe it. I have my own handwriting back! As my MS progressed, my handwriting became nearly unreadable even by me. But now with the improved manual dexterity that LDN has given back to me, my signature once again resembles MY signature. Also, I think my gate has improved. I still feel a little wobbly, but I walk much straighter.

I'm glad it's starting to work for you Marion. Just like how the disease affects us negatively, sometimes it takes a while for positive changes to be apparent from LDN.

Keep up the good work!

Cherie

I take allergy meds (usually Benadryl for immediate s/t relief) with LDN, Kelly. It helps my itching AND burning.

Did it help your itching last night?

Cherie

Hey There.......Twinkletoes gave me this great link about LDN.

However, I can't read all of these posts!

A couple of questions:

1. Your neuro doesn't have to prescribe this?
2. Any sides?
3. Cost - more or less than Tysabri?
4. Really can notice changes? That is exciting.


I've just about given up on Tysabri. When I first started it I developed a severe sinus infection. I was off for several months got back on and when through 5 wks of the runs. Started it back in August, and almost have full blown case of pneumonia. My PCP treated me for the above illnesses. I should also say (with head hanging) that I smoke. He put me on predinsone last week and I feel better than I have in a while. I should also mention that while I was off Ty I felt really good. I have to contact neuro to update him on this last episode. I should also mention that I have been in a relapse for about the last 8 wks. I have tried Avonex/Rebif/Novantrone/ Copaxone/ Tysabri. I just really want something that will help me and not push me back for every step I take.

Thanks for listening but I'm just so

Wow, I hadn't realized we were at 330 posts in this thread! Holy cow!

There are a couple other LDN threads. Just click on "Search" (see bar above), click "tag search" and type in ldn. Happily, they are much shorter.

It's so nice to swallow capsules instead of jabbing myself. So inexpensive, too. I read quite a lot about it before beginning, and never could find a reason NOT to try it.

Been on LDN 6 weeks now. So far, so good. Worth a try, I'd say.

Good luck, whatever you decide, Deb.