Kelly, if this is "normal" for you at certain times, then just let it pass as you always do (whether that be with using extra meds or not). LDN isn't going to take care of all our symptoms, for sure.

It would only be if there is a "change" (net "new) for the bad that I would be concerned whether LDN is doing what it should. Having said that, I have had new things come and go along the way, but nothing as "severe" as pre-LDN . . . so I wait till the storm passes. It always does.

Cherie

Leaving the tremors and spasticity untreated will not cause them to get worse, Frank. Of course it can get worse on its own anyway (due to disease progression) . . . but not treating it will not "cause" any additional damage.

Be extra careful because spasticity and tremors can cause you to fall though . . . which of course could cause collateral damage. Also, do stretching exercising to keep yourself as limber as possible.

My concern is that 1.5mg of LDN is not going to protect you from relapses and progression. If you can get back up to 3.0mg, that would be much better. Try a few times before you give up on that idea, even if you put a 3 week break between each try.

Cherie

For me it was less complicated. I never took any DMDs since I wasn’t diagnosed until after I was secondary progressive.

I didn't notice any difference between 3.0mg and 4.5mg, but I did continue to have improvements through to the 9 - 12 month mark (started 4.5mg at about 5 - 6 mo), so perhaps there were changes that I just didn't notice.

The only reason I stay at 4.5mg is because it is "optimal". I really don't think it would make much of a difference to lower it, and I do lower it when the Fall cold-weather spasticity hits (for a few weeks every year). Lowering it helps with that weather transition, but I always make my way back up to 4.5mg . . . cause I can.

Cherie

I am still on my copaxone Mon Cherie, Merci, for info about tremors and all, I tend to take it easy when I walk so I dont do a header

I know I talked about it stopping C, but nero the neuro agreed with no new visible lesions I am gonna stay on the C, so those side effects I shall have to deal with, but between C and LDN he felt I should be ok. He was pleased very much so by the abilities of the LDN to cover almost all of my SX

I'm glad about that, Frank. I don't use anything else (as you know), but also tolerate LDN very well, and can't take the other drugs. If I could, I probably would . . . not because I don't trust LDN, but because I like double-insurance.

Still . . . I would try to get back up to 3.0mg at some point. You made so many changes all at once, and I really think LDN could help with the tremors and spasticity once everything else is stable.

Cherie

Wow, Marion, isn't it wonderful??

Frank, staying on the C with the LDN is super OK... I know a guy on both and wouldn't give up either..

Kelly, How's it going?

Twink, Any better?

Cherie, You Too..

Thanks for asking, Sally.

I identified a LOT with what Kelly said, as far as the dizzyness/vertigo spins. I have to be esp. careful when I lean over to retrieve something out of the fridge or cupboard, b/c I'll invariably have to "right" myself when I stand up. BTW, I never had issues until about a month after beginning the LDN. The pharmacist swears there is no connection. *shrug

Yesterday I would have fallen after my shower if there hadn't been two walls to put my hands on. Usually one hand will do it.

I hesitated (b/c of the dizziness) going from 3.0 to 4.5 mg., but figured, what the heck. It really didn't cause sx to be much worse/different.

I need to start doing some stretching b/c my body is tight and sluggish, esp. in the mornings. Just like when I was on Copaxone.

Still, I believe my stamina has increased. Also, at work I notice my brain is clearer and I make fewer mistakes. My fingers still type some incorrect words, though.

Frank, this is one of the first threads I click on, too. It's helpful to see how everyone else is doing. Thanks SallyC and Cherie for "moderating" this LDN thread. Very helpful to see what the LDN "oldsters" have to contribute, as well as the other newbies.

I had some medication "shuffling" going on when this sx hit. I was going off of my AD, Neurontin and Baclofen. I don't know if this triggered this sx or the sinus infection I also had.

I've had this sx before....it was one of the first I had but I have noticed that my sight is a little whacky and I'm wondering if I'm fixing to have double vision again. This is exactly how it started when I had it three years ago. And it was right about this time, too. It's always in October that sx flare up for me.

If I look straight ahead I'm fine. If I cut my eyes to the right my vision is doubled. It's not so bad to the left. But....it's always been this way ever since I've had sx. If I call my Neuro he'll just say "take steroids" and I'm not going to do that again. I'll just wait it out. Hopefully it won't get any worse.

But I don't think that the LDN has anything to do with the dizziness/vertigo that we have. I have to "right" myself too if I bend down or move in any direction quickly.

Oh, the joys of MS...............

My dizziness has left the building!!!

I had a bad day yesterday with it, and not a particularly great night's sleep.

Nevertheless, I'm not dizzy today.

I wish I could remember if I was dizzy first thing this morning, though.

I bought a neti pot and rinsed my sinuses out during my shower.

I live in the desert and they are always dry, and since starting LDN, I'll get a bloody nose every so often.

It could be coincidence, but I sure feel better!