Hi Fellow LDNers. Eh, I'm doing ok, I guess. It's just that time of year and I'm a bit out of sorts, but the LDN is still working fine......It must be the ever changing weather, like Cherie said.

Kelly...Good show....keep up the good work..

Marion, you too, whoopee and I hope the stiffness subsides..

Hi Twink.. Hey, Stamina and clarity of thought are very good LDN pluses. I'm sorry about the dizzyness and stiffness. I hope dropping back to 3mg will help. I have had no nasal or bleeding problems with LDN.....Check with your Doc. It could be a side effect of one of your other meds. Please let us know how it goes, OK..

Jnet, See, I told you...it's the time of year...dang weather and stress etc..etc.. I hope you find your correct doseage and, in time, your LDN works better for you..

Cherie, Honey, I didn't know you were scheduleds for an operation. I hope it isn't too serious and will be a complete success and you heal quickly, with no lasting SX...

Thanks, Sally.

No, no big deal really. I have to get my gallbladder taken out, and if all goes as planned, it should be the "easy" surgery they can normally do.

I just haven't recovered as well as I used since I've had MS, but surgery has never set off an attack or anything . . . so that's good. (I think they need to set up those smoking rooms again, cause I used to bounce back when I knew I had to if I wanted a smoke. HA! )

I have some "shadows" in my adrenal glands too, so he was waiting on my second CT scan in case he needed to operate there too. I had a regular CT several weeks ago, but this particular one I now need is taking a long time to schedule. They've decided to go ahead with this surgery in the meantime, and I'll deal with the other issue later if I have to . . .

Thanks for the support, Sally.

Cherie

Cherie, don't all type As have to have their gull bladders out?? I did!!

Cherie ~ well wishes for the surgery. May you be blessed with good news and a quick recovery.

I AM SO EXCITED TODAY! My LDN is on it's way.

I asked the Dr. "why do YOU suggest LDN for those with MS?" and he said #1. it works and #2. there is no toxicity

I am very encouraged and looking forward to less fatigue!

I'm headed out on a road trip for the next two days. Driving North to Salt Lake City to see the Chief of Neurology about my MRI and get my 2nd opinion on the "extra" unexplainable things on the last MRI.

Thinking good thoughts and feeling very happy today.

I'm excited for you, Brenda!! Once you start on it let us know how you're feeling!

hi all long time no check in from me.. so far so good i think... i do have a few questions though..


1.) should i feel super hyper and awake with LDN during the day? my mind is running 1000mph and my body is keeping up oddly..

2.) can it make me sleep like i am in a coma at night? ( not really a bad thing since i haven't had a good nights sleep for years)


other then that i feel no different (which is good) but its only been around a month.. so i cant really say if it is doing anything to help with my relapses yet.

Sorry Cherie I answer your questions about Tysabri. I was on for a year and a half. It kept my brain mri stable but my EDSS score was going downhill. So, before chemo, I thought I would try LDN.

Wow, Drew! What pharmacy do you use? I think I'll switch!

Glad you're doing so good. Don't be such a stranger.

That's it . . . !!! And, I suppose you are 'entitled' to that opiinion too, since you are and ex-gallbladder yourself.

Cherie

CONGRATULATIONS, and good luck!!

This "doc" you spoke to, was it someone who often rx's LDN for people who can't find anyone else who will . . . or just your normal doc?

All the best at your appointment, and I hope it is nothing too serious. Remember though, LDN is apparently helpful for LOTS of ailments, so maybe it will help with any others you may have too.

I don't know that I'd want to feel "hyper" (is it like anxiety??), but if it is just giving you mental clarity and energy, combined with physcial stamina . . . I'd say that's fairly common.

Two years earlier (when I didn't have so many problems) I probably wouldn't even have noticed much symptom difference from LDN . . . but when things were WAY bad, then there seemed to be a great change in some aspects. I know you've struggled a lot with the MS PunkD, so perhaps you will notice "significant" changes in some of the symptoms that you've really wrestled with. LDN didn't take away all my symptoms, but the one's that I couldn't live with any more were affected enough that I felt like I wanted to, and could "live" again.

Yes, my sleeping/awake patterns were affected in a big way, and from the get-go. I used to have really bad insomnia, for days on end. I think that was due to the pain which was rectified with LDN, but who knows if that was why I started being able to sleep. However, not being sleep deprived probably contributed to my mental clarity the next day too.

Do you have a fairly regular pattern of relapses? I thought you were PPMS, no?

I was having relapses every 3 months so it was pretty obvious when that stopped. I have had one long'ish attack since being on LDN, but my neuro figures it was because I ignored an infection ... which lead to other infections ... Once I cleared up the "main" infection, everything else fell in place again. (The moral of the story is DON'T IGNORE INFECTION, even while on LDN! )

Hi J. I think that's what puzzles me about the premise on any drug that we might use . . . we might "appear" to be doing better with our MRI's, but it doesn't necessarily mean we are actually 'doing better'. That's why I always say that the important thing is "how we are doing".

I hope LDN works for you too, of course . . . but I'm really glad you are now giving your body a rest from attempting another more heavy-duty drug, especially following Tysabri. Hopefully this is your "ticket" going forward. Good luck!! (BTW, when do you plan to go on a steady dosage of LDN?).

Cherie