Originally Posted by lady_express_44 (Post 410957)

CONGRATULATIONS, and good luck!!

This "doc" you spoke to, was it someone who often rx's LDN for people who can't find anyone else who will . . . or just your normal doc? :confused:

All the best at your appointment, and I hope it is nothing too serious. Remember though, LDN is apparently helpful for LOTS of ailments, so maybe it will help with any others you may have too. :p



I don't know that I'd want to feel "hyper" (is it like anxiety??), but if it is just giving you mental clarity and energy, combined with physcial stamina . . . I'd say that's fairly common.

Two years earlier (when I didn't have so many problems) I probably wouldn't even have noticed much symptom difference from LDN . . . but when things were WAY bad, then there seemed to be a great change in some aspects. I know you've struggled a lot with the MS PunkD, so perhaps you will notice "significant" changes in some of the symptoms that you've really wrestled with. LDN didn't take away all my symptoms, but the one's that I couldn't live with any more were affected enough that I felt like I wanted to, and could "live" again.

Yes, my sleeping/awake patterns were affected in a big way, and from the get-go. I used to have really bad insomnia, for days on end. I think that was due to the pain which was rectified with LDN, but who knows if that was why I started being able to sleep. However, not being sleep deprived probably contributed to my mental clarity the next day too.

Do you have a fairly regular pattern of relapses? I thought you were PPMS, no?

I was having relapses every 3 months so it was pretty obvious when that stopped. I have had one long'ish attack since being on LDN, but my neuro figures it was because I ignored an infection ... which lead to other infections ... Once I cleared up the "main" infection, everything else fell in place again. (The moral of the story is DON'T IGNORE INFECTION, even while on LDN! ;) )



Hi J. I think that's what puzzles me about the premise on any drug that we might use . . . we might "appear" to be doing better with our MRI's, but it doesn't necessarily mean we are actually 'doing better'. That's why I always say that the important thing is "how we are doing". ;)

I hope LDN works for you too, of course . . . but I'm really glad you are now giving your body a rest from attempting another more heavy-duty drug, especially following Tysabri. Hopefully this is your "ticket" going forward. Good luck!! (BTW, when do you plan to go on a steady dosage of LDN?).

Cherie

Originally Posted by lady_express_44 (Post 397349)

"Simple Home Candida Test:

Try this simple test to see if you have candida. First thing in the morning, before you put ANYTHING in your mouth, get a clear glass. Fill with water and work up a bit of saliva, then spit it into the glass of water. Check the water every 15 minutes or so for up to one hour. If you have a candida yeast infection, you will see strings (like legs) traveling down into the water from the saliva floating on the top, or "cloudy" saliva will sink to the bottom of the glass, or cloudy specks will seem to be suspended in the water.

If there are no strings and the saliva is still floating after at least one hour, you are probably candida yeast free.

If you have a bunch of threads or cloudiness, and especially if it develops quickly, you can be pretty darn sure you have a serious case of candida infecting you. A few threads or light cloudiness indicate not as serious an infestation.

NOTICE--Unfortunately you can still have candida yeast, the spit test is not 100%. The best way to test for candida yeast is find a doc who has a Bradford Variable Projection Microscope and have a live blood analysis done or get a stool test done. Many chiropractors use the Bradford High Resolution Microscope."

http://ldn.proboards3.com/index.cgi?...lay&thread=303

Originally Posted by lady_express_44 (Post 410957)

CONGRATULATIONS, and good luck!!

This "doc" you spoke to, was it someone who often rx's LDN for people who can't find anyone else who will . . . or just your normal doc? :confused:

All the best at your appointment, and I hope it is nothing too serious. Remember though, LDN is apparently helpful for LOTS of ailments, so maybe it will help with any others you may have too. :p

Cherie

Originally Posted by mom2five (Post 411564)

First to answer your question Cherie, the doctor is a family practice doctor in PA that Rx's LDN for people because of his belief in it. He did a phone consultation. I will continue to work on my local neurologist for an Rx, but this will get me on it now. Skips pharmacy is sending the LDN! :partytime2:

And now for the good news:

The Chief of Neurology in Salt Lake said that everything looks like MS on the MRI, so no extras to worry about. :)

We had a very candid discussion with him about meds, because he is not my "treating neurologist". He told us that the higher the effectiveness of the MS drugs, the more side effects they have. :(

He also said that the MS drugs focus on the inflammation of the disease - nothing is aimed at helping the degenerative condition of the disease.

He is doing a trial on an oral med right now BG something or other. He was definitely sold on Avonex and does the Tysabri infusions. He said there are about 9 different trials on MS drugs going on right now.

I asked him, "what do you know about Naltrexone?" He told me about the study in San Fran, I told him about the recent grant from NMSS to do a trial on mice in PA. He wasn't aware of that one. He told me that he believes LDN will NEVER get trials done...because it requires 1/2 billion dollars to do the double blind placebo trials. And as we all know, there is no profit in LDN.

I asked him, "why do you think LDN helps people with MS?" He said, "I don't know, maybe it has some anti-inflammatory qualities." Wow...an honest answer. I feel like we opened the door for him to criticize LDN and he didn't do it.

Hubby and I feel very good about the direction we are headed. :Dancing-Chilli:

Originally Posted by mom2five (Post 411564)

He told us that the higher the effectiveness of the MS drugs, the more side effects they have. :(

Originally Posted by herekitty (Post 411652)

Huh?? I have never heard that before.

I'm sure he's a good neurologist.....but that just sounds like an excuse to keep you on something that makes you miserable.

I'm happy that he didn't think the MRI was anything to worry about. I'm excited for you to start the LDN and report back how you're doing on it! :)

Originally Posted by lady_express_44 (Post 410957)

I don't know that I'd want to feel "hyper" (is it like anxiety??), but if it is just giving you mental clarity and energy, combined with physcial stamina . . . I'd say that's fairly common.

Two years earlier (when I didn't have so many problems) I probably wouldn't even have noticed much symptom difference from LDN . . . but when things were WAY bad, then there seemed to be a great change in some aspects. I know you've struggled a lot with the MS PunkD, so perhaps you will notice "significant" changes in some of the symptoms that you've really wrestled with. LDN didn't take away all my symptoms, but the one's that I couldn't live with any more were affected enough that I felt like I wanted to, and could "live" again.

Yes, my sleeping/awake patterns were affected in a big way, and from the get-go. I used to have really bad insomnia, for days on end. I think that was due to the pain which was rectified with LDN, but who knows if that was why I started being able to sleep. However, not being sleep deprived probably contributed to my mental clarity the next day too.

Do you have a fairly regular pattern of relapses? I thought you were PPMS, no?

I was having relapses every 3 months so it was pretty obvious when that stopped. I have had one long'ish attack since being on LDN, but my neuro figures it was because I ignored an infection ... which lead to other infections ... Once I cleared up the "main" infection, everything else fell in place again. (The moral of the story is DON'T IGNORE INFECTION, even while on LDN! ;) )

Originally Posted by PunkDizzle (Post 411846)

oh no not hyper as in anxiety.. just very energized.. much like i use to be before the daily fatigue.. i think i chose to use the word "hyper" just because its been so long since i felt somewhat normal and able to function without feeling like i "needed" a nap... it has done very little for my pins & needles Sx but the fatigue was the big killer in my MS.. there again it is way to early in my LDN journey to say if it will or will not help some of my other Sx.. but i can live with some pin pricks if i have to.

my relapses are usually pretty well spaced at 6-8 months apart but neuro says i am RRMS :confused: but that could also be because none of the CARBs were working for me... but so far since the LDN makes me feel better i am gonna keep taking it.. sure i may have another relapse in a few months.. i may not... but at least ill feel better no matter what happens as odd as that sounds..

Originally Posted by mom2five (Post 411860)

This doesn't sound odd to me at all!

I am also hoping that the LDN helps with the fatigue. That is what has been giving me the most trouble. During remissions I used to be able go like the energizer bunny. I'm hoping to feel that way again. You give me hope PunkDizzle. ;)

Originally Posted by mom2five (Post 411564)

First to answer your question Cherie, the doctor is a family practice doctor in PA that Rx's LDN for people because of his belief in it. He did a phone consultation. I will continue to work on my local neurologist for an Rx, but this will get me on it now. Skips pharmacy is sending the LDN! :partytime2:

Originally Posted by mom2five (Post 411564)

And now for the good news:

The Chief of Neurology in Salt Lake said that everything looks like MS on the MRI, so no extras to worry about. :)

Originally Posted by mom2five (Post 411564)

We had a very candid discussion with him about meds, because he is not my "treating neurologist". He told us that the higher the effectiveness of the MS drugs, the more side effects they have. :(

He also said that the MS drugs focus on the inflammation of the disease - nothing is aimed at helping the degenerative condition of the disease.

He is doing a trial on an oral med right now BG something or other. He was definitely sold on Avonex and does the Tysabri infusions. He said there are about 9 different trials on MS drugs going on right now.

I asked him, "what do you know about Naltrexone?" He told me about the study in San Fran, I told him about the recent grant from NMSS to do a trial on mice in PA. He wasn't aware of that one. He told me that he believes LDN will NEVER get trials done...because it requires 1/2 billion dollars to do the double blind placebo trials. And as we all know, there is no profit in LDN.

I asked him, "why do you think LDN helps people with MS?" He said, "I don't know, maybe it has some anti-inflammatory qualities." Wow...an honest answer. I feel like we opened the door for him to criticize LDN and he didn't do it.

Hubby and I feel very good about the direction we are headed. :Dancing-Chilli: