NeuroTalk Support Groups - LDN Information & Check In

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Hi Folks...Just catching up on my reading of your posts, since my DSL outage. I went through an anxiety attack and my MS numbness ramped up, yesterday. At Bedtime, I took my LDN and this morning, all was back to normal..:)

So thats my "thank you" LDN story...Wheeee!!!!

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Originally Posted by mom2five http://neurotalk.psychcentral.com/im...s/viewpost.gif
First to answer your question Cherie, the doctor is a family practice doctor in PA that Rx's LDN for people because of his belief in it. He did a phone consultation. I will continue to work on my local neurologist for an Rx, but this will get me on it now. Skips pharmacy is sending the LDN! :partytime2:

That's my LDN Doc (Dr. S) ...What a nice Guy..:cool:

Quote:

Originally Posted by SallyC (Post 412793)

That's my LDN Doc (Dr. S) ...What a nice Guy..:cool:

Mine, too! I just luv him! :circlelove: Wish all docs could be so kind.

Quote:

Originally Posted by weegot5kiz (Post 412695)

howdy all sorry i have been distant, been thinking about going back to 3mg for a couple weeks, Deb and I have discussed it, with an outside influence i decided last night I would see, my legs have been bad lately and if yall recall that was the last thing to feel better when i started LDN, well that is gone the pain is back big time and I really dont want to add another med so shall try 3mg again and so far I woke at 8 ish , pretty late for me but am not tired yet so fingers crossed,

I hope this finds everyone doing as well as can be, and gobble gobble

Glad to hear you are trying a higher dosage, Frank, and hopefully it works for you this time.

Remember, you can always mix it with distilled water (1mg drug to 1mg water), keep refrigerated, and only take +1mg or +.5mg if you find an increase of 1.5 mg too much to start. You could dump 5 - 10 pill contents to equal distilled water and just top up with a smaller dosage ... am I making sense?

Why did you drop from 3.0mg anyway, I can't remember? You wouldn't have been on that too long though, were you?

Hope this does the trick for you. :hug:

Quote:

Originally Posted by marion06095 (Post 412778)

I am really surprised. Due to poor planning on my part, I ran out of LDN yesterday, and didn’t get my refill until today. So I was without LDN last night for the first time since I started taking it. I was fine this morning, and figured that missing just one dose probably won’t do much of anything. Well, I was wrong. The very first MS symptom that LDN helped with was my tremors. Oh how quickly I forgot what it felt like to have difficulty controlling my fingers/hands/arms. My intention tremor is back, not full force, but very noticeable. In fact, I am having problems typing, which is something that I haven’t felt since I started LDN. What a luxury it is to be able to take LDN tonight, and know that I will be much improved in short order. I guess being reminded of how things could be much worse is a good idea now and then.

Yep, Marion, only one missed dosage and my symptoms come flooding back too. :eek: I was relieved when the anesth... said I didn't have to miss Sunday's dose. :cool:

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Originally Posted by jnet1589 (Post 412787)

Well, sorry this is gross, but I started to go to the bathroom a little today. I need to go a lot more. That is my goal for the next week or two. My legs are week. I think if I got my digestive system working I might feel better. Boy, they are calling me at USC trying to get me back on Tysabri. I feel it's for the money.

Seriously, try benefibre Jnet. Works like a charm for me and I have gone WEEKS without going prior to finding that remedy.

Being stopped up like that does affect my symptoms, FOR SURE!! I have no idea why that would be :confused:, but as soon as things get going again, I am back to status quo. Good luck with that!

WELCOME BACK, SALLY . . . I MISSED YOU. :hug:

Has anyone tried one of the colon cleanses that are advertised nowadays? It cleans your insides (for lack of a better description) and supposedly gets your body back in balance.

I have used Dual-Action Cleanse in the past (pre MS) and ordered it again to take. I've been taking it since Wednesday and the difference in how I feel is incredible.

You do the cycle for 30 days on and 30 days off. It just consists of taking two pills in the AM and two in the PM. I don't get the bad side effects some of the cleanses cause you to have. But I do feel sooooo much better just since starting this.

I do believe a healthy digestive system plays a big part in your overall health and well being. This along with the LDN have made a huge difference for me. Medications can slow your digestive and elimination processes....and I have found that since I've stopped most of my meds (Neurontin, Baclofen, my AD, and sleep aids) my system is returning to normal. Of course, always consult with your doctor before beginning one of these cleanses.

I dropped down cause it was knocking me out I was lethargic at best, got to admit today i got that duh feeling, I dont like it, but I had a rough night so shall give it 5 days or so to see any diff in leg pain and the lethargic feeling

Herekitty, How did you know when you could start dropping your meds? How long have you been on LDN? I think I may have secondary progressive now.. I takr a lot of stuff and would love to drop some.

About the colon cleanse. I would be home bound for a while. I guess after Thanksgiving I could do it and make that commitment. I hate this and have never done this before, but I might have to wear a depends at night if I did this. Sometimes when I go, I have to go right then. I hate ms.

As far as benefiber goes, I do use it sometimes but I have to use more than the normal person. I have the chewable pills. That's why my gastro has me on konosyl.

Frank, I just doubt that LDN is having that lathargic effect on you..:confused: Could it be one of your other Meds and maybe LDN is not mixing well with it?

LDN usually has the opposit effect, as it causes you to be up, because of the raise in endorphins...it may even cause insomnia at first.

I sure hope you can get this worked out. I want you to benefit from the 3mg LDN, as I don't think the lower doseage does much.

Good Luck.:hug:

http://www.youtube.com/watch?v=8sHEW...x=0&playnext=1

I created a Playlist on Youtube from the LDN 2008 Conference

Wow, Larry thanks a heap. I didn't know this was out there....It's great. Susie Sedlock and I have been e-mailing for years and I knew a little of her Father when He started LDN and when Susie then started it.

I watched every film with great interest. I'm sure all here will enjoy seeing some or all of this presentation.

How are you doing and Your Dad? I hope Well.:)

Thanks again..:hug: