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Old 11-29-2008, 03:37 PM #671
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WoooooHooooo!! I am so happy for you all, too..

Now, rest on your laurells for a spell, you deserve it.

I just finish a thanksgiving feast brought to me today, by my Cousin and the best cook in all the world, I'm not kidding.. She is the head nutritionist and Chief at a very Posh retirement community and I'm just lucky enough to have her in the Family..

I'm very tired now from eating all that, so, time to rest..
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Old 11-29-2008, 04:06 PM #672
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Enjoy your turkey coma, Sally. It is rest well earned.
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Old 12-02-2008, 02:31 PM #673
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Did LDN help you all to survive TG and.....Are you ready for Christmas?

I still love my LDN..
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Old 12-02-2008, 04:10 PM #674
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Oh, did it ever!! I was tired after all the festivities (cooking and eating) but nothing like I was the year prior. I actually enjoyed doing all the prep work and cooking. I paced myself, didn't try to do it all at one time, and was very proud of myself with what I accomplished.

I cannot imagine life without LDN. It's just not an option for me to be without it.
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Old 12-02-2008, 08:33 PM #675
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Sally, I sure did. I participated (and not in a trivial way) in the cleaning before, the meal preparation, the eating (of course), and the clean up after. Last year I did have hope, but mostly I sat in my wheelchair, and tried to make the best of my loss of function. This year … well, let’s just say that the stuffing was the best I ever made and I was able to be a fairly attentive hostess. I have been given back a big portion of my life that I had lost. How can this not be amazing?
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Old 12-02-2008, 08:53 PM #676
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Quote:
Originally Posted by SallyC View Post
Did LDN help you all to survive TG and.....Are you ready for Christmas?

I still love my LDN..
Sheesh, with all the acronymns flying around, I thought TG was something neurological!!! hehehe!

Yes, TG was great! The Saturday afterward we hosted a Family Reunion for my husband's family. We had a cousin and her DH show up that we hadn't seen for 30 years! She has agoraphobia, but has been getting out a little lately. She did have to go lie down, as her drugs sap her energy at a certain time during the afternoons, but so nice to see her out and about.

I baked my MIL's rolls! She has been gone for about 12 years, but I made her Parkerhouse rolls. It just so happened that they won the bakeoff! I'm not much of a roll maker, but I guess it just made everyone nostalgic for their mother's excellent hot-from-the-oven light and fluffy ones. *sigh She made it look so easy.

I was just about to say that I doubt I could have done that a year ago, but I actually did make rolls, and some pies from scratch. But I still maintain that LDN gives me stamina and clarity of thought.

Want to know a little secret? I gave my Dad 3 weeks' worth of LDN (1.5 mg.) to see if they do anything for his lymphoma. He got the night sweats last night and slept poorly. I hope he hangs in there, though. We have an appt. to see the doc on Monday. This is the same GP that Rxd my LDN.
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Old 12-03-2008, 04:10 PM #677
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YES! I made it through and then some. It was so nice to enjoy company and the kids.

We are moving...here comes the big test.
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Old 12-03-2008, 08:15 PM #678
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This is what I've heard through the NMSS-We have received a number of inquiries about the use of low dose naltrexone (LDN) as a treatment for multiple sclerosis. There are currently no published data from controlled clinical trials to support the use of naltrexone in MS. Further study is needed to determine if this is a safe and effective treatment for people with MS. This was in 6/08. All the other "negative" stuff have been in other MS magazines or MS books that I have. I also have heard the positive things. I'm going to talk to my neuro about in January. If she won't prescribe-any suggestions.
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Old 12-03-2008, 11:55 PM #679
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Quote:
Originally Posted by doxiemama View Post
This is what I've heard through the NMSS-We have received a number of inquiries about the use of low dose naltrexone (LDN) as a treatment for multiple sclerosis. There are currently no published data from controlled clinical trials to support the use of naltrexone in MS. Further study is needed to determine if this is a safe and effective treatment for people with MS. This was in 6/08. All the other "negative" stuff have been in other MS magazines or MS books that I have. I also have heard the positive things. I'm going to talk to my neuro about in January. If she won't prescribe-any suggestions.
OH that "negative" stuff...

yeah, LDN has a big negative effect on their wallets

we've been running a live study of LDN in Humans with all sorts of diseases. MS is no longer the biggy! there's less and less of us each day... but our numbers haven't gone SMALLER, all the other disease usage has grown larger.... Crohn's, Psoriasis, Celiacs, all sorts of cancers, sarcoidosis, ALS, altzheimer's, and growing daily, AUTISM

And the AUTISM usage PROVES it's NOT placebo. Parents apply a transdermal application cream WHILE their YOUNG CHILDREN sleep. So 1. they don't know they're on anything, 2. they wouldn't know what they were on anyway.



I'm on it since 4/17/2003 for my MS, 3.0 MG

My DAD is on it since 3/28/2007, 13 days after being Given SIX months to LIVE. They put stents in his kidneys. They did chemo for 6 months, every Tuesday, and he took LDN 4.5 MG every day. He said he felt dead on Wednesdays, but by Monday's, ok. In September they did a CT scan, rushed him into the operating room, REMOVED THE STENTS, told him his tumors shrunk in half, they never saw that before on their chemo, and stopped the chemo immediately.

3 months later they declared him in remission and stable.

3 months after that, the next 6 month mark, they did another CT scan; on LDN only, his tumors shrunk in half again.

So I no longer care what anyone says. and my brother is on it since 4/07 for sarcoidosis, he was going downhill fast. he's now stable.



oh, btw, I added more to the playlist from 2008 conference... http://www.youtube.com/view_play_lis...CAC&playnext=1
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Old 12-04-2008, 12:17 AM #680
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Quote:
Originally Posted by doxiemama View Post
This is what I've heard through the NMSS-We have received a number of inquiries about the use of low dose naltrexone (LDN) as a treatment for multiple sclerosis. There are currently no published data from controlled clinical trials to support the use of naltrexone in MS. Further study is needed to determine if this is a safe and effective treatment for people with MS. This was in 6/08. All the other "negative" stuff have been in other MS magazines or MS books that I have. I also have heard the positive things. I'm going to talk to my neuro about in January. If she won't prescribe-any suggestions.
Actually if you go to www.lowdosenaltrexone.org there is a lot of information on the trials. There was one trial done where the conclusion was that it was "safe". Another great site for help is www.gazorpa.com

Best of luck to you!
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