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-   -   LDN Information & Check In (https://www.neurotalk.org/multiple-sclerosis/50240-ldn-information-check.html)

weegot5kiz 08-01-2008 11:15 AM

morning all got my script, going to go through skips, even my doc knew of skips too and the ldn he said its worth a try, starting me at 1.5 for starts and we shall see, i really hope it does me good and would love to cut down on other meds, this could be berry berry good

SallyC 08-01-2008 11:53 AM

Quote:

Originally Posted by weegot5kiz (Post 336852)
morning all got my script, going to go through skips, even my doc knew of skips too and the ldn he said its worth a try, starting me at 1.5 for starts and we shall see, i really hope it does me good and would love to cut down on other meds, this could be berry berry good

WooHoo!!!! Good wishes for You..:)

lady_express_44 08-01-2008 12:14 PM

Congratulations and good luck, Frank!! As I recall, you have spinal lesions . . . and that damage is where I saw considerable benefit from using LDN.

Please bear in mind the information I provided Twinkletoes previously though . . . you will have to get up to 3.0mg - 4.5mg in order to realize significant benefit, at least according to Dr. B.

Sally, there is a lot of good information in this thread, and I would like to propose that we make it into a sticky. What do you think?

Cherie

SallyC 08-01-2008 12:38 PM

Quote:

Originally Posted by lady_express_44 (Post 336908)
Sally, there is a lot of good information in this thread, and I would like to propose that we make it into a sticky. What do you think?

Cherie

Not a bad idea....Just don't want stickys to take over the board like they do at MSW..:winky:

lady_express_44 08-01-2008 12:47 PM

Quote:

Originally Posted by SallyC (Post 336920)
Not a bad idea....Just don't want stickys to take over the board like they do at MSW..:winky:

Hmmm . . . yeah, good point.

I know patients, with various conditions/ailments (like cancer, Crohn's, Parkinsons, ALS, etc.) are often looking for information on LDN, and we (with MS) seem to have the most experience with it. It might be easy access for them (as a sticky) as well . . .

I guess the moderators might know the "demand" for this information better, so perhaps they can decide.

Cherie

weegot5kiz 08-01-2008 02:13 PM

make it a sticky in the medication forum?, because the doc said he was giving it to a few others who do not have MS and its helping them also at this dosage, just a thought, just got off the phone with skips its being processed, cool

Curious 08-01-2008 03:41 PM

i think keeping it here on ms would be the best thing. there is no way we can do a sticky on the medication for each med.

any dr can use the search the feature and find the info here. it would make more sense, since this thread is mainly about how ldn works for people with ms. :)

let me know what y'all decide. i would like to see it as a sticky. i do refer our pd members who ask about ldn to the posts here on ms.

i do agree sally, we don't want too many. with ldn, there have been many threads and posts about it, but they tend to get lost.

Bearygood 08-01-2008 06:39 PM

Quote:

Originally Posted by weegot5kiz (Post 336852)
morning all got my script, going to go through skips, even my doc knew of skips too and the ldn he said its worth a try, starting me at 1.5 for starts and we shall see, i really hope it does me good and would love to cut down on other meds, this could be berry berry good

Good luck, Frank!!

SallyC 08-01-2008 07:23 PM

Quote:

Originally Posted by Curious (Post 337036)
i think keeping it here on ms would be the best thing. there is no way we can do a sticky on the medication for each med.

any dr can use the search the feature and find the info here. it would make more sense, since this thread is mainly about how ldn works for people with ms. :)

let me know what y'all decide. i would like to see it as a sticky. i do refer our pd members who ask about ldn to the posts here on ms.

i do agree sally, we don't want too many. with ldn, there have been many threads and posts about it, but they tend to get lost.

I think a sticky here on MS would be nice, Yappy, Thanks..:hug:

lady_express_44 08-01-2008 08:59 PM

Quote:

Originally Posted by Curious (Post 337036)
i think keeping it here on ms would be the best thing. there is no way we can do a sticky on the medication for each med.

any dr can use the search the feature and find the info here. it would make more sense, since this thread is mainly about how ldn works for people with ms. :)

let me know what y'all decide. i would like to see it as a sticky. i do refer our pd members who ask about ldn to the posts here on ms.

i do agree sally, we don't want too many. with ldn, there have been many threads and posts about it, but they tend to get lost.

I would agree with that too, Curious.

At first I just thought this would be about the article Sally posted, and it wasn't until near the end that it seemed to make sense to make it a sticky. I wasn't thinking about the other conditions, in any of what I wrote along the way, and I would hate to lead others astray by making it a global medication sticky. At least if they have to come here to find it, they will know the info provided is potentially specific to MS.

Thanks for thinking ahead!

Cherie


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