Did he give you a rationale for this? I totally understand the skepticism but from what I have read about LDN I don't really think it would be harmful to try it.

I suggest for all interested, to go to the LDN homepage and read and copy all pertinent info and take it to your Doc and make him read it.. There is absolutely no good reason for any Neuro or PCP to refuse a script for you to try it. ..

http://www.lowdosenaltrexone.org/

I just left a detailed mess for nero the neuro, and he called back and said tomorrow he should have more time to talk about it over the phone, my neuro is pretty cool i even have his cell number incase of serious emergency

prior to this I have read a few other threads about LDN and have been curious, so lets see if he is game, would love to drop 5-6 meds, that would be great

Again a big hug for Sally and thankl you

I asked my neuro for the OK to try LDN and my GP prescribed it for me. I am waiting to get some other drugs out of my system before I start LDN so I have a real baseline to judge from.

However, I cannot STAND articles like this that claim a miracle cure for MS and several other diseases. There may be ulterior motives to not promote or research/study LDN, but many people ARE taking it and MOST ARE NOT CURED!! Many have symptom improvement or feel a slowing of progression. I don't care who prints what... if ANYTHING (?perhaps Revimmune?) could guarantee to stop progression, everyone would be on it. Especially with so few potentially dangerous side effects.

I will wait until after my next MRI in Sept and will be starting LDN then...I think

I agree, I did exactly that, along with the pharmacy information required and my GP said "Why not? You've tried a lot worse than this!"

I like a good, logical attitude.

I'm going to ask my neuro again, when I see her in August. If she won't prescribe, maybe she'll agree to let my PCP. I plan to ask my PCP with or without neuro's Okay.

Should I stop other meds before starting LDN? Are they compatible?

I read somewhere, if you're on an interferon you should stop it first, but what about a chemo med (Imuran)?

How about those for sx relief, such as Baclofen?

Any guidance or others experiences are most welcome and appreciated/

's

As I mentioned previously, until the trial results are announced, they don't know for sure IF the interferons contradict LDN. Up until recently, it was Dr B's thoughts that they might cancel each other out in some way . . . but I do know of some people who found relief from LDN even while on the interferons.

As far as Imuran, I'd ask Skip. I know that people were allowed to continue with LDN in the Tysabri trials . . . but of course that is a whole different drug then Imuran.

Are you on an interferon? Does it not seem to be working for you? Have you considered Copaxone (with LDN) instead?

You can use LDN with any other symptom management drug (except Codeine and Narcotics), but most people I've talked to have found they can drop several of those meds once they start feeling better from the LDN. I dropped antidepressants after starting on LDN, but I still waited about a year to try it and I went through a long and difficult withdrawal from them. I don't take anything but the LDN now (and Naproxen, occasionally).

Cherie

Thanks so much Cherie!
I've tried the A, C, and R meds and we don't get along. That is why I take the Imuran. Not being on it is when I had my worse MS year, 2006.

I'll definitly ask about my meds before stopping them. I was wondering about a/d's as Lexapro has helped me immensely.

's

Bappy, you can go right on taking your AD, if it helps you. I have been on one the whole time I've been on LDN, For anxiety/depression.

The jury is still out on taking narcotics, too. They did a study (don't ask me where) on using Morphine and LDN together. They say it causes you to actually use less of the morphine and yet, it still works on the pain. I took Darvocet and it worked great for my pain, while still on LDN. My Doc told me to stop the LDN, but I forgot and....it didn't matter.

Imuran is an Immune system suppressant, so, I'm not so sure of it working with LDN....it seems counterproductive to me, but, I'd ask Dr Gluck of the LDN. org. He did say it was ok to take IVSM.

Good luck..

I did! I printed that off and highlighted a few areas. I sat there while he read every word!!! He said he didn't see any reason why not to try this!!!

Doing the happy dance!!!

The prescription is for 3 months. He suggested I come in for a blood test to make sure it wasn't causing any problems with my liver.

Woohoo!!!!

Ummm, is there a secret handshake or anything special I need to know about? I hope there's not any hazing involved to join the LDN club!!!