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Old 08-30-2008, 07:36 AM #26
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lady_express_44 lady_express_44 is offline
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lady_express_44 lady_express_44 is offline
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Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
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Quote:
Originally Posted by PolarExpress View Post
Do I hear just a "hint" of sarcasm there?

Seriously though, I'd be interested to know why it helps some with fatigue, some with spasticity, some with bladder issues, etc..Seems it does something a little different for everyone..
It's good that we can be excited about 'being better than we were' though isn't it?

I think it's like the disease itself; it affects us all differently too. Some people have no numbness or bladder issues, and others have little mobility problems. I think it depends on how much axonal damage there is, and/or whether there is still opportunity for LDN to influence repair/recovery at that point in time.

The goal is to stabilize the disease process though; to slow progression and reduce relapses . . . and it does seem to do that for most everyone.

Quote:
Originally Posted by herekitty1960 View Post
I'm excited to see what my increased dose of 3.0 will accomplish for me. It's hard not to bump up to it earlier than I'm supposed to (but I won't)!!
The ONLY reason I would suggest you don't bump it up now, Kelly, is because you also went off some other drugs at the same time. I started at 3.0mg, and it really wasn't a big deal (a few minor s/t side effects), but I wasn't trying to make any other changes at the same time either.

Quote:
Originally Posted by herekitty1960 View Post
It just baffles me why more doctors are not suggesting this to their MS patients as a first choice drug. I know it the $$ thing but that's just wrong....
I think the reason that doctors don't prescribe it initially has more to do with the fact that it hasn't been scientifically proven for MS. The reason for that still comes down to money . . . but a doctor would have to be pretty brave to suggest LDN when there are drugs on the market that have proven to help some of us.

Quote:
Originally Posted by herekitty1960 View Post
This just proves to me that we have to be our own best advocate when it comes to treating our condition. No longer will I blindly trust any doctor again.
I agree whole-heartedly, and think that applies for what we want as well as what we DON'T want to take. They are way too quick to get us on some pretty scary meds, even try to guilt us into it sometimes, yet will deter us from trying something like this?

Cherie
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"Thanks for this!" says:
Kitty (08-30-2008), SallyC (08-30-2008), weegot5kiz (08-30-2008)
 

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