Quote:
Originally Posted by mom2five
First to answer your question Cherie, the doctor is a family practice doctor in PA that Rx's LDN for people because of his belief in it. He did a phone consultation. I will continue to work on my local neurologist for an Rx, but this will get me on it now. Skips pharmacy is sending the LDN!  |
I was wondering that because a lot of doctors aren't really familiar or experienced with LDN, but it sounds like he is.
Quote:
Originally Posted by mom2five
And now for the good news:
The Chief of Neurology in Salt Lake said that everything looks like MS on the MRI, so no extras to worry about.  |
Great news!!! Now you have a starting place for your MRI activity too, so you will be able to guage how the LDN works for you in that regard.
Quote:
Originally Posted by mom2five
We had a very candid discussion with him about meds, because he is not my "treating neurologist". He told us that the higher the effectiveness of the MS drugs, the more side effects they have. 
He also said that the MS drugs focus on the inflammation of the disease - nothing is aimed at helping the degenerative condition of the disease.
He is doing a trial on an oral med right now BG something or other. He was definitely sold on Avonex and does the Tysabri infusions. He said there are about 9 different trials on MS drugs going on right now.
I asked him, "what do you know about Naltrexone?" He told me about the study in San Fran, I told him about the recent grant from NMSS to do a trial on mice in PA. He wasn't aware of that one. He told me that he believes LDN will NEVER get trials done...because it requires 1/2 billion dollars to do the double blind placebo trials. And as we all know, there is no profit in LDN.
I asked him, "why do you think LDN helps people with MS?" He said, "I don't know, maybe it has some anti-inflammatory qualities." Wow...an honest answer. I feel like we opened the door for him to criticize LDN and he didn't do it.
Hubby and I feel very good about the direction we are headed. |
Yes, the current drugs do work on inflammation, and do not have the same efficacy for neurodegeneration. That's why you will hear people say that they aren't having attacks, yet they continue to decline significantly. In fact, there are some that are of the opinion that inflammation isn't a "bad" thing at all, and a necessary part of the healing that is required with this disease. Seems to defy logic, but long-term studies have not proven our meds to be effective over the long run, for most people, so clearly something's not working the way it is intended.
I'll see if I can find the explanation someone I respect very much (but is on the CRABs himself, not LDN) gave me for how LDN might affect neurodegeneration. If I haven't come back in a week or so (ramping up for surgery right now), remind me please ...
My neuro is involved in that BG trial too, and she was expecting some good results. I haven't heard anything negative yet, so I'm keeping my fingers crossed . . .
Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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11-21-2008, 11:55 AM
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