Hi Larry

I don't know if you remember me from msrefugees but I am finially on ldn. My husband and I went to the USC conference. I just started 3.5 mg ldn Dr skip is gradually bringing me up. We had company for 10 days so my eating was bad, but I'm getting back on track now, so hopefully in a couple weeks I'll start feeling good. Right now I don't notice much.

Keep a journal and hopefully you'll see some progress I see MSRefugees has new staff, just stopped by there today. Made the rounds



TropicalDawg has a lot more vids there, I only did a playlist for the 2008 conference so far.

Dad and I are doing well, thanks 20 months now for him. Over 2000 days for us

Thanks for those videos Larry. I watched them all, too, and it's just amazing what some people have been through prior to giving LDN a try.

I simply do not understand why more folks don't give this drug a try. It's so easy to use....and if you try it and don't think it's for you then you can stop without any withdrawl or nasty side effects. Those with sx that are not responding to steroids or other medications should at least try it....nothing to lose and lots to gain!

I was taking Neurontin, Baclofen and Zoloft. The Neurontin was causing me to gain lots of weight. The Baclofen made me woozy and even dizzier and I just felt like I didn't need the Zoloft after starting LDN. I weaned myself off each drug so as not to shock my system and had no problems. Now, the only meds I take are my BP medication, my thyroid medication and the LDN. I may not even need to take my BP med much longer because my BP has been on the low side of normal for about three months now.

If you are on lots of meds I wouldn't suggest stopping them all at once....or any of them without speaking to your doctor first. I'm not sure what you're taking but some meds require a doctor's assistance to wean off correctly.

You can read more about the Colon Cleanse by going to www.dualactioncleanse.com. It's a good product and I just do the "good" program and it's sufficient for me.

Good luck!

Kelly offered great advice!!

Glad to hear you and "dad" are doing great still, Larry.

Frank, I have to agree with Sally that lethargy as a LDN side-effect is extremely unusual . . . but of course anything is possible. Are you on A/D's? NOT that I think you should try to ditch them, if you need them, but I didn't notice much of a difference with fatigue and LDN till I went off A/D's.

Maybe your body just needs longer to adjust and it'll balance out over time. Or, are you attempting to accomplish much more when you up it.

Of course, LDN doesn't work as well for everyone . . . but I wish it would for you. Most importantly, I hope you can tolerate a therapeutic dosage (even if some of the side-effects aren't great) so that perhaps it has the opportunity to stop/slow the disease process anyway.

Cherie

LDN works! I don't even care if it's possibly the placebo effect. I have taken 1.5 mg for three nights now and...

After two months of bed rest due to fatigue, 24 hours in pajamas, eye/balance troubles and headaches...

I was up, showered, dressed and exercised by 10:30 this morning. I ran a few errands in town, went to Costco for pies and did my grocery shopping. It's 11:00 at night and I am still smiling. My eye is starting to give me a headache, but I'm feeling pretty great otherwise.

And if that is not impressive enough for you...my husband informed me yesterday that his business may have to file bankruptcy, putting our house, cars, etc. in danger. And I'm still breathing!

Now, I know it may all catch up to me tomorrow and I promise to take it easy tomorrow...but I am relishing in the victory of today.

Yippee for you and LDN, Brenda!!!!

I hope your husband is able to pull his business out of the slump. That's very worrisome.

So happy for your good LDN results! You go, girl!

Hey, will you come help me fix Thanksgiving dinner -- you'd got all that energy and probably need something to do with it, right?

Brenda, that's wonderful news!!! I'm so glad you gave LDN a try. Isn't it great to feel so good!!

Brenda, isn’t it wonderful? LDN was the first improvement in MS symptoms I had ever had. Don’t expect that every day will be as wonderful of the first days. It isn’t like you don’t have MS. You are going to have to get used to pacing yourself at your new and improved level of function.

Enjoy!

Yep, Marion, you are absolutely right!! This drug is great . . . but it can't save us from ourselves. Actually, I have one friend who I've told NOT to go on it, cause I know he'd KILL himself if he realized the benefit of all the extra energy that most of us get.

Another point too though . . . which I have probably said too many times already . . . is that the goal of LDN is to reduce relapses and slow progression. It takes time to see if it is going to work for this purpose, and in my experience it does for most everyone who sticks to it . . . but that is the REAL measure of it's effectiveness. Symptom improvement is just a HUGE bonus!

Glad you are feeling good, Brenda!!

Cherie