ok, after many pokes, prods, and tests by several special MDs. it has been determined that I DO NOT have primary sjogrens. The RA MD was more than premature in her zeal to provide me with a sjogrens dx. The MS MD said i have PRIMARY MS, RRMS. NOT sjogrens, and he proceeded to take a bite out of the other md for trying to drag me off my path. He said they work very hard to provide a dx, and frequently keep people ON limbo isle till they can prove or disprove MS, and he didnt hand me that dx lightly.

So, IF and thats a big IF I have secondary sjogrens, it doesnt matter if I have that lip biopsy or not, it wont change my treatment. it wont matter. I can still be treated for my poor old dry eyes without interfering with my dx.

My MRI shows 2 new non enhanced lesions and 2 new enhanced lesions. I was a run away train before and was collecting lesions like a kid collects baseball cards. So, this is a slow down for me. I am to stay on copaxone for another 6 months and we will re eval from there. it appears as though the C is starting to do its job. took forever with me.

Thanks for all the support.

So glad to hear you have a dx. Maybe not the best one, but no doubt you feel a little relieved knowing exactly what you are dealing with.

It gives those of us in "limbo land" so encouragement (if that is what you want to call it). I go see my neurologist (he is an MS specialist) in August and I am hoping to get this mess cleared up.

(((((((Hugs to you for all that you have gone through.))))))

Missy

Support is yours.

Hey, were you near the tornado??

I am not sure if I should say congrats or not. So, I'll just say I am glad you have some answers now and wont be driven off the path.

Glad to hear that you've got some answers and your health is stabilizing!

Not glad to hear that it's MS, but what can ya do?

Finally some solid answers! And grats on the Copaxone working!

Congratulations... right?

Has anyone taught her the secret handshake yet?

Congrats on the Dx! It is good to have someone tell you it is all in your head...so to speak..you know what I mean. MS..that is...a Dx...I mean...

Glad you got answers...

AMN...I didn't teach her the handshake but I can show her the happy dance...lol

The one I used to do at work...

Well I WAS confused as I have been following your story on Sjogren's having gone through it myself. But I had dry MOUTH very badly too.

Ok, you already WERE DX with MS then this rhuemy came along, for the dry eyes etc and on and on.

BUT I am glad your MS docs are so certain, mine were not. I HAD an MS DX then not, then maybe, then not. So when I saw my Rheumy she told me I had way too many symptoms to not have some DX.

The next Rheumy said no, without the labs to substantiate a DX of Sjogren's he took that DX away. BUT he contributed to another DX that I have been fighting with the MS docs, Autonomic dysfunction that is another story...

It gets so dang confusing. Told you that Methotrexate had side effects but DID get rid of my spasticity entirely !!! NO one told me that.

Good luck Girl!! Keep us posted. How are your eyes now??

Jan