Sandy,

The drug works at any level of progression but I believe its main mechanism is stopping progression allowing your body to repair as much as it can. Judy regained a lot of function but still has some deficits. I think the pain relief and getting rid of fatigue were the biggest benefits for her. Regaining bladder control and improving her walking were bonuses.

A man she knows had been in a wheelchair and did manage to walk again but that won't be the same for everyone. One woman was in a hospital bed in the fetal position and regained the use of her arm and was able to be in a wheelchair.

I'm not on any DMD's and have high hopes for this being my drug of choice in the future. Only twice a year and no side effects means a lot when you're a drug and needle-a-phobic!

Carol