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New MS Drug / Dirucotide?

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Old 08-25-2008, 12:04 AM #1
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Originally Posted by CarolM View Post
Sandy,

The drug works at any level of progression but I believe its main mechanism is stopping progression allowing your body to repair as much as it can. Judy regained a lot of function but still has some deficits. I think the pain relief and getting rid of fatigue were the biggest benefits for her. Regaining bladder control and improving her walking were bonuses.

A man she knows had been in a wheelchair and did manage to walk again but that won't be the same for everyone. One woman was in a hospital bed in the fetal position and regained the use of her arm and was able to be in a wheelchair.

I'm not on any DMD's and have high hopes for this being my drug of choice in the future. Only twice a year and no side effects means a lot when you're a drug and needle-a-phobic!

Carol
Definitely paints the picture of a drug of extreme convenience. Perhaps too this would eventually lessen the number of necessary trips to our neurologists as well While we've been hoping on a pill, of course that requires regular routine. This would improve the quality of life for MS'ers so significantly.
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Old 08-25-2008, 07:37 AM #2
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Dmplaura, happy dance!!!!!!

Carol, thanks for the info. I usually don't get too excited about new drugs in the market but this one does have me a bit tingly, in a good way!
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Old 08-25-2008, 07:43 AM #3
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Wow, I can't believe I'd never heard of this treatment. It sounds like a miracle! Especially the twice a year thing.....can't get much more convenient than that.

I'm going to keep on researching this drug. Hopefully a trial will be available here in the states before too long.
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Old 08-25-2008, 07:47 AM #4
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Kitty, it is already here! In it's third stage!
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Old 08-25-2008, 07:53 AM #5
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Kitty, it is already here! In it's third stage!
Why did I think that it was in Canada? I need to read the article again!!! See....I need something for my cognitive health!!
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Old 08-25-2008, 07:57 AM #6
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Cherie posted a few tidbits in this thread so you don't have to go re-read it.
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Old 08-25-2008, 01:51 PM #7
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I hope it works, because I'm getting so tired of the nightly stab of Copaxone that I've been slacking off a lot the past few weeks.

If all I had to do was go and get an IV two or three times a year, I'd switch to that.
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Old 08-26-2008, 12:47 AM #8
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Why did I think that it was in Canada? I need to read the article again!!! See....I need something for my cognitive health!!
Because the Phase II/III study is happening in Canada and Europe for SPMS as well as another study for SPMS in the States. I have been asked by my MS clinic if I would be willing to consider entering this trial. I said yes, but I have a series of tests/ assessments this upcoming month. I'm not really in a position to receive a placebo. If I find out more, I'll let everyone know.

I don't even know if I'm a carrier of the HLA markers required.
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Old 08-26-2008, 01:03 AM #9
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weeble, good luck with your decision hun. Much respect!
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2004 to present - Trigeminal Neuralgia
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March 2008 - Multiple Sclerosis DX
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05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 08-26-2008, 11:16 AM #10
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Quote:
Originally Posted by weeble View Post
Because the Phase II/III study is happening in Canada and Europe for SPMS as well as another study for SPMS in the States. I have been asked by my MS clinic if I would be willing to consider entering this trial. I said yes, but I have a series of tests/ assessments this upcoming month. I'm not really in a position to receive a placebo. If I find out more, I'll let everyone know.

I don't even know if I'm a carrier of the HLA markers required.
I could probably do this trial too, but my neuro has given up on trying to recruit me as a guinea pig. I suppose if I could stay on LDN at the same time (she has always promised I could do that, no matter what trial she's tried to talk me into), then I might consider this particular one.

They like drug virgins, and since I don't intend to take anything else anyway, maybe this would be a good option for me.

Could you please let me know what you find out; where the trial center is, lead researcher in BC, trial criteria, etc. if they give you the documentation on it?

Thanks!
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