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Old 08-28-2008, 03:49 PM #1
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Yep, I shed more than usual and boy, did I feel like a teen for quite some time.
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Old 08-28-2008, 04:27 PM #2
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I didnt think it was possible, but I felt ickier when I woke up this morning.

Just took my shower, and I'm still not feeling totally clean. (hair just feels weird)

I havent done any Copaxone for about a week or two (I know..I'm a bad girl) and I'm not planning on starting up again until monday. (going on a trip saturday) I've been trying to let my skin on my thighs and stomach to heal. I've got an injection site on my stomach that I did a little more than a week ago that's still itchy. (dull needles really blow!)

I've been on the C since last september/october, and have noticed that the zit problem seems to be almost as bad as when I was a teenager. I even cut my hair in the hopes that my skin would clear up. (my face was all zitty when I was a teenager till I had my hair trimmed)

I just am annoyed that even tho I cut my hair a little shorter recently, that's not helping the icky oily sensation in my hair. I'm starting to wonder if it's not oily hair, but a weird sensation on my scalp, and maybe fingers are not feeling things normally.

I just dont like feeling gross.

I looked up the side effects for Copaxone last night...and was amazed that there really are some side effects to C. A few that I'm wondering are related to a few problems that I've been having lately. It's making me wonder if I want to continue with the C.
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Old 08-28-2008, 05:25 PM #3
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Sorry, but I cannot answer question; appreciate all the posts on Copaxone for this is the only ABCR drug I'm considering.

I have a MS Rash dx by three MS Specialists; one at Johns Hopkins and two at the MS Clinic in Pittsburgh. A drug I take now controls this rash (not acne) for the most part. I wonder how I will react to Copaxone; I read it can be one of its side effects.

I was told to hang in there for it gets better after the first 6 months. I will try it and hope it works out... Yes, it does have lots of possible side effects IMO Erin.
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Old 08-28-2008, 06:37 PM #4
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Thanks Erin <3
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Old 08-28-2008, 07:22 PM #5
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Quote:
Originally Posted by 0357 View Post
Sorry, but I cannot answer question; appreciate all the posts on Copaxone for this is the only ABCR drug I'm considering.

I have a MS Rash dx by three MS Specialists; one at Johns Hopkins and two at the MS Clinic in Pittsburgh. A drug I take now controls this rash (not acne) for the most part. I wonder how I will react to Copaxone; I read it can be one of its side effects.

I was told to hang in there for it gets better after the first 6 months. I will try it and hope it works out... Yes, it does have lots of possible side effects IMO Erin.
0357,

Can you do me a favor and explain this "MS rash"? What is it that you're using that controls it? Thanks!
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Old 08-28-2008, 07:56 PM #6
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Quote:
Originally Posted by Gazelle View Post
0357,

Can you do me a favor and explain this "MS rash"? What is it that you're using that controls it? Thanks!
It is much like a cold sore starting out in my hairline and face then moving to my neck and chest. I have scars on my chest from this rash. It's funny because I always thought of this rash as such and I noticed in two of my neuro's reports it was described as similar to cold sores.

Trilafon cleared up this rash with a week. My family doctor said he wasn't surprised because of friend of his had a rash and this is the only drug that controlled it.

To my regret this rash is 'starting' to come back even though my Trilafon was increased by 2mg; total 14mg daily. If memory serves me correctly, I started out on 8mg daily.
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Old 08-28-2008, 09:55 PM #7
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Quote:
Originally Posted by 0357 View Post
It is much like a cold sore starting out in my hairline and face then moving to my neck and chest. I have scars on my chest from this rash. It's funny because I always thought of this rash as such and I noticed in two of my neuro's reports it was described as similar to cold sores.

Trilafon cleared up this rash with a week. My family doctor said he wasn't surprised because of friend of his had a rash and this is the only drug that controlled it.

To my regret this rash is 'starting' to come back even though my Trilafon was increased by 2mg; total 14mg daily. If memory serves me correctly, I started out on 8mg daily.
I wonder if that's the stuff my sister uses. She has some weird skin condition that she's been trying to control. I think they finally found something that I think might be helping her. (of course, she doesnt have MS, so it might be another type of rash)
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Old 08-29-2008, 05:14 PM #8
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Thanks, 0357. I never heard of that before. Quite interesting!

Sorry to hear, however, that you have this problem. I certainly hope it clears up for you again.

Really appreciate you explaining that for me.
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Old 09-05-2008, 12:36 PM #9
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I do find myself getting acne sometimes and my hair is thinning....but....I've always gotten a little acne here and there around 'that time' each month and the hair thinning, I see my GP this week and will discuss that, could be just a reaction to all those babies I had consecutively, lol

If you read the fine print about Copaxone, there is mention to thyroid....always something to get checked out with your GP.

Best of luck....
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Old 09-05-2008, 01:50 PM #10
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Quote:
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If you read the fine print about Copaxone, there is mention to thyroid....always something to get checked out with your GP.

Best of luck....
Ah ha! I never noticed this in the fine print about C. My neuro (as I have said before) does monthly blood work on me, while on C, and thyroid is one he checks in this.

Every time I go into the clinic to give blood, they ask "Are you on thyroid medication or something?". I have to explain that no, I'm not on thyroid medication. I am on daily injections of Copaxone for MS. "Ahhhh".
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2004 to present - Trigeminal Neuralgia
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March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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