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Old 08-28-2008, 03:09 AM #1
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Default Question for Copaxone users

I was just wondering if anyone who uses Copaxone has noticed anything weird with their skin and hair while on the Copaxone.

Anyone notice that you can barely go 12 hours after washing your hair before it feels greasy and dirty again?

Anyone notice their skin feeling oily and an increased number of acne pimples, no matter what you do?

or a sensation of feeling dirty even if you've just taken a shower?

increased sweating??? (and even if you wash everything that sweats, you can still smell it!)

For the past few days, no matter how much I wash my hair or shower, I just cant get away from feeling oily and icky. Today I washed my hair around noon...around 5pm, I felt like I hadnt washed my hair, it felt like I hadnt washed my hair in days. It's an icky feeling...and the general sensation of feeling dirty and sweaty so soon after taking a shower is driving me nuts.

Am I just nuts, or maybe need to change my brands of soap and shampoo, or can this be a side effect of Copaxone???
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Old 08-28-2008, 03:14 AM #2
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You know, I broke out like mad within the first 2 months on Copaxone. My hair too seemed to fall out strand by strand constantly.

I've always had oily skin, so I've always showered a lot. I haven't noticed a change there, but the pimples, yes definitely.

Nearing completion of box 4 of C, and my skin's been nice for the last month.
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Old 08-28-2008, 06:40 AM #3
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during the first few months, I had oiley hair like a teenager, and pimples! wth! but as the months ticked off, I went back to normal hair, and clear face.

hope it gets better for you too.
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Old 08-28-2008, 10:41 AM #4
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me too. Became a teenager again for about the first month with all the pimples I got, LOL. Not sure about the hair part since I got it chopped about the same time I started the Copax.

For me, the oil problem has gone down. I've been on it for over a year now, and it's gotten better. Hang in there.
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Old 08-28-2008, 11:51 AM #5
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I have thought it seemed like my hair had a bit of a sticky residue to it since starting Copaxone, no skin problems though. Now if I blow dry my hair its not a problem but many times when I let it air dry it will feel sticky. I can't say 100% but I have my suspicions, lol.
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Old 08-28-2008, 12:35 PM #6
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my hair that has always been thick has thinned so badly since being on this stuff
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Old 08-28-2008, 03:49 PM #7
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Yep, I shed more than usual and boy, did I feel like a teen for quite some time.
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Old 08-28-2008, 04:27 PM #8
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I didnt think it was possible, but I felt ickier when I woke up this morning.

Just took my shower, and I'm still not feeling totally clean. (hair just feels weird)

I havent done any Copaxone for about a week or two (I know..I'm a bad girl) and I'm not planning on starting up again until monday. (going on a trip saturday) I've been trying to let my skin on my thighs and stomach to heal. I've got an injection site on my stomach that I did a little more than a week ago that's still itchy. (dull needles really blow!)

I've been on the C since last september/october, and have noticed that the zit problem seems to be almost as bad as when I was a teenager. I even cut my hair in the hopes that my skin would clear up. (my face was all zitty when I was a teenager till I had my hair trimmed)

I just am annoyed that even tho I cut my hair a little shorter recently, that's not helping the icky oily sensation in my hair. I'm starting to wonder if it's not oily hair, but a weird sensation on my scalp, and maybe fingers are not feeling things normally.

I just dont like feeling gross.

I looked up the side effects for Copaxone last night...and was amazed that there really are some side effects to C. A few that I'm wondering are related to a few problems that I've been having lately. It's making me wonder if I want to continue with the C.
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Old 08-28-2008, 05:25 PM #9
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Sorry, but I cannot answer question; appreciate all the posts on Copaxone for this is the only ABCR drug I'm considering.

I have a MS Rash dx by three MS Specialists; one at Johns Hopkins and two at the MS Clinic in Pittsburgh. A drug I take now controls this rash (not acne) for the most part. I wonder how I will react to Copaxone; I read it can be one of its side effects.

I was told to hang in there for it gets better after the first 6 months. I will try it and hope it works out... Yes, it does have lots of possible side effects IMO Erin.
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Old 08-28-2008, 06:37 PM #10
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Thanks Erin <3
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9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX

Last edited by dmplaura; 08-28-2008 at 08:27 PM.
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