Thanks Weegot5kids.. isnt your name Frank? What a coincidence as so was my DH. AND he was the BIGGEST BEATLE fan.. so ironic.. but I will pay attention. Its picking the "right" doctor as I do not want to fool around going from place to place. AND I only have a few hours on Thursday and Fridays to make appts around my work schedule.

Thanks for being the FIRST... I appreciate it lots

Jan

Thanks Av8rgirl... endrochronologist hmm.. I see my nutritionist this week and he has an amazing eval he does throught a computer.

But I forgot to mention that another neuro in the MS neuro's office thinks I "may" have narcolepsy. He was in the middle of dx that but needed yet another sleep study in a few months. I have sleep apnea but now have DAYTIME apnea.

thanks..

Jan

One more thing.. I DO Have lesions periventricular area, temporal lobe, frontal lobe I think with a new one on the PONS which I believe is part of the brainstem. I just feel as if more lesions are forming whatever they are caused by..

Jan

Hi, Jan!

I'm glad to know that you feel comfortable to come around and soak up some support. We don't care whether you have a dx like ours, you're one of us now (my condolences) and like I've said before, you will always be one of us (please, no theatrics).

I agree with Frank & FG, you know that something isn't right and it's your body. Don't give up, the right doc is out there somewhere and he/she is equipped and willing to help you. Find that doc so you can get on with your life!

And, do me a favor, get yourself a good massage just for the sake of you.

Hey Jan! Of course we remember you and all you've been through. I have to echo what the other's said about seeking a good Dr and finding out what is truly going on w/you. Not knowing can be so stressful.

Good luck w/the new job and make time for YOU. From one who knows the true meaning of Stress, it's really important to do things to make you feel better, aka AMN's massage suggestion.

Keep us posted on how your'e doing, Jan~~ we care about you.

hey Jan,
I remember you...another limbo girl....here I am too....hugsss to you...

Hey I am seeing an endrocrinologist...sp??? soon, in October...although my thyroid test was good...my dr just said lets see about hormone related stuff..and who knows, another type of dr might just figure out a new way to go...hoping so....

hugsss to you Jan, take it easy, take care, and stay and visit more..hugss,sarah

Hugs and warm thanks to you guys for being there for me. Picking a good doc and f/u specialists will be guided by the spiritual side I hope.

I am bit reluctant to find a massage therapist since I had a very serious reaction with a series of massage treatments. Oh it felt good to get the massage...what I didn't know is that as she was pushing on scar tissue to break down the adhesians..it flooded my system and when I got off the table I could not walk!! I could not remember how to get dressed.. I was totally messed up and spacing out. I finally made it out of there and with hanging on, I even drove home and cried to my DH that something is terribly wrong.

I kept falling that day and the last fall I hit my nose and gave myself a concussion!! Since all this I found a great massage therapist up North but not in town.

But..I'll keep pluggin away.

Warmly Jan

I remember you! Sorry your starting to have a hard time again but congrats on the new job! There is nothing more satisfying than helping others. Good for you!

Now, September 1st is around the corner. I'd say you should see a doctor. Why not? Even if they don't think it's ms, it may be something that can be helped. Besides, you need your bp meds so I don't think you have any options.

Good luck with the new job and welcome back.

Let us know what he says, okay?

I was thinking of going to see one, and Jan I agree you should as well. It never hurts to rule things out. On the other hand, wouldn't it be nice to find the trouble and know there's something you can do about it?