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08-31-2008, 10:44 AM
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#18 | |||
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Again a BIG WOW for all your support. Its humbling let me tell you to receive. A good lesson for me though.
Cherie, no one else in my BIG family has this autonomic stuff, but my mom had very similar symptoms and I always thought they just put her DX in the arthritis box and never did an MRI. She colllapsed at her desk at work and was told she had seizures. She was on meds for years without a single seizure and the meds wore down her heart dying of congestive heart failure. This started with tingling in my face. I have had iritis and sensitivity to my eyes, moving them or blurriness. Dizzy spells that last for seconds or weeks, months. Balance, unsteady walking, buzzing and spasms in my legs. SPASTICITY in my legs and back are the longest and only one never corrected even for a day. BALANCE problems for a long time until I went to this amazing nutritionist. It has improved since seeing him 2006. I was near organ failure in his first eval of me. SHAKING inside my head is what brought me to the other neuro who thinks I have a form of narcolepsy along with these autonomic problems. This shaking ONLY happens when I am on my side or sleeping or having just fallen alseep. He thinks the autonomic problms ARE a form of narcolepsy. These 2 neuros take my autonomic problem seriously. I always seem to present with TIA/Stroke or heart attack. in the ER, they admit me, then dismiss me as having "altered consciousness"... hmmm.. I have had swallowing problems Brain Atrophy, major cognitive problems, SPEECH difficulties, SPACING out which is the scariest part part. I try to cover all my other symptoms on the job. Yet I have managed to work. With the stress of my new job, and having to get up so early may be provoking all this new stuff. My last PCP, a great female doc who stayed on top of everything, gave me a RX for my beta blockers knowing it will be a while to find the right MD now. Thanks again.. I am on a journey.. like it or not. Warmly, Jan |
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