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#1 | |||
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Magnate
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Quote:
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | PunkDizzle (09-15-2008), weegot5kiz (09-15-2008) |
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#2 | |||
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Wisest Elder Ever
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That's great, Punk! Whatever works!! Sometimes I think (no, I know) we know our bodies better than any doctor and know what works best for us. Just because something is FDA approved means nothing if it doesn't work for you!!
I hope you continue to get relief with this combination. ![]()
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | PunkDizzle (09-15-2008), weegot5kiz (09-15-2008) |
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#3 | |||
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Grand Magnate
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Glad you found something that works! I may have to up my B-vitamins now..
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"Thanks for this!" says: | PunkDizzle (09-15-2008), weegot5kiz (09-15-2008) |
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#4 | ||
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Junior Member
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![]() Thank for sharing ![]() Kim |
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"Thanks for this!" says: | PunkDizzle (09-15-2008), weegot5kiz (09-15-2008) |
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#5 | |||
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Wisest Elder Ever
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of Bcomplex are you using? I ask because too much B6 can be harmful and give neuro symptoms.
B12 has long be linked with MS. (some people mistakenly diagnosed actually have B12 deficiency) I would not go over 50mg of B6/day. B12 is needed by the body to convert serotonin to melatonin (which is our sleep hormone). Also, magnesium oxide is terribly unreliable. New studies have shown that from a 400mg tablet about 8mg is absorbed. (volunteers had blood levels drawn after taking various forms.) I have a magnesium thread here that explains elemental doses and which forms work best. http://neurotalk.psychcentral.com/thread1138.html Magnesium oxide remains on the shelf fooling people however and doctors (who keep it in their therapeutic handbooks which are never updated). Quote:
Magnesium is valuable for everyone including MS patients because it helps with muscle functioning and reduces cramping and twitching. Estimates are that up to 70% of Americans are low in this mineral! So be careful with B-complex. Watch your dosing!
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | braingonebad (09-15-2008), ewizabeth (09-15-2008), Koala77 (09-17-2008), PunkDizzle (09-15-2008), weegot5kiz (09-15-2008), whispers (09-17-2008) |
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#6 | |||
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Wise Elder
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Good for you! Jim was having bad fatigue too and he thinks his meds are playing a part. We've been weening off a few and so far so good. B-12 eh?
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: |
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#7 | |||
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Member
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WEll GOOD for you~! We are often told how harmful supplements are etc.. yet the meds we take can and do make us toxic.. or.. lose its efficiency building up a tolerance.
Althought stress and foods I eat contribute to fatigue.. I no longer have that debilitating kind.. ya know.. where you can't even sit up any longer. Know why? I see a specialized nutritionist who has this amazing eval tool that READS your body's energy electrically and tells you what you are deficient in.. toxic from.. and corrects it EXACTLY in the dose YOU need.. not a "recommended dose" Yes some supplements/vitamins can be wasted if you take too much but most of us are deficient in MINERALS et al. ALL I know is that I have not had that awful debilitating fatigue for over 2 years now !! I see this guy regularly and my 2 Neuros saw the results and tell me to see him too. Good luck in fighting that fatigue. But anyone trained to use NRT or nutritional response testing using the autonomic system.. like a chiropractor..nutritionist.. do yourself the favor. It works AND it does not interfere with your meds because its a whole food, organically grown and ground into tablets to swallow. Jan |
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"Thanks for this!" says: | PunkDizzle (09-15-2008), weegot5kiz (09-15-2008) |
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#8 | |||
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Member
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Quote:
the brand i am taking is a store brand which unless you live in PA or NY i doubt many ppl have heard of it (Wegmans) but the #s are Vegetarian Tabs serving size is 2 pills Thiamin 15mg Riboflavin 20mg Niacin 25mg B6 20mg Folic Acid 400mcg B12 150mcg Biotin 300mcg Pantothenic Acid 50mg Choline 10mg Inositol 10mg PABA 10mg Phytonutrient blend 1000mg thats odd about the magnesium i never knew.. mine are a Rx kind but the same rules probably apply i am guessing? still 8mg is better then 0 mg. ![]()
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Dx:2005 RRMS Nothing Beats Bloodshot Eyes And The Scream Of A Tube Amp At 3am. . |
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"Thanks for this!" says: | weegot5kiz (09-15-2008) |
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#9 | |||
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Grand Magnate
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Thanks for sharing your experience, PunkD, and I'm glad you are doing better.
I agree with Kelly ... whatever works! Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | weegot5kiz (09-15-2008) |
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