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Old 09-17-2008, 08:47 PM #1
janlici janlici is offline
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I completely understand! I quit it after 11 mos, 2 weeks because of the frequency and increasing severity of the IPIRs. I HATE that drug!

I take 15mg of Methotrexate every week now. Pills...no more shots. They did nothing and I progressed steadily through all the treatments. No slowdowns for me.....

You WILL feel better without that crummy drug!
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Old 09-18-2008, 06:51 AM #2
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I feel like such a weenie! I threw in the towel a month ago because of IPIRs that I had been having. Mine are different and didn't affect my breathing or heart but were very painful in my back, neck and head. After the last one where I couldn't walk for about 5 minutes because of the excruciating pain I said NO MORE!

My neuro surprised me and talked me into trying Avonex before trying Tysabri. So nurse should be here next week to show me how to do the IM shot. Wonderful, not!

I hope you find something else that works for you.
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Old 09-18-2008, 07:04 AM #3
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Having never experienced an IPIR, I do think that those who experience them frequently are making the right decision by either choosing another drug option or going natural/drug free.

Best to all of you
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2004 to present - Trigeminal Neuralgia
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8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
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