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Update, and . . . Thanks to those of you who have sent private messages.

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Old 09-16-2008, 01:50 PM #1
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Default Update, and . . . Thanks to those of you who have sent private messages.
My current cognitive state leaves me unable to figure out how to reply.

Had a flare. Was in the hosptial for a week and a half. Have been home since Thursday. We're getting the ball rolling for me to switch from Betaron to Copaxone. Hope it will reduce the fx and severity of my MS flares.

Found out last week that I was approved for SSDI; payments will begin the end of November. I also expect to receive $100 per month from KPERS, for school district and other state employees.

Current symptoms seem to include mild cognitive/memory stuff, balance/walking issues, and lots of fatigue.

~ Faith
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Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
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Old 09-16-2008, 01:56 PM #2
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Hi Faith,

I'm so sorry you had another flare. I hope things will get better for you when you make the switch to Copaxone. I hope they get you changed over soon. I'm really glad your SSDI came through, thank goodness for that.
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Old 09-16-2008, 01:57 PM #3
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Welcome back Faith! Sorry to hear you've been in the hospital. Crossing my fingers for you that Copaxone does the trick!

Congrats on SSDI as well (I know very little about this, but I'm guessing it's a good thing?).
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March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 09-16-2008, 03:19 PM #4
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hope you are feeling better soon Faith!!!
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Old 09-16-2008, 07:02 PM #5
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thanks for the update faith.
this has been a really long haul for you.
i'm glad you get to stop work and get some benefits.

take care.
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Old 09-16-2008, 07:51 PM #6
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Quote:
Originally Posted by NurseNancy View Post
thanks for the update faith.
this has been a really long haul for you.
i'm glad you get to stop work and get some benefits.

take care.
Thanks, Judy. Sort of a mixed blessing, I guess. Would rather be well enough to work.

~ Faith
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Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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Old 09-16-2008, 08:47 PM #7
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Sounds like you've really been thru it! I'm so glad you're feeling better, and hope the Copaxone can do what the Beta couldn't..Take care!
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Old 09-16-2008, 09:26 PM #8
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Hello Faith glad you are out of hospital, hope the change to copaxone works and helps eliviate the MS bs, welcome back
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Old 09-17-2008, 07:35 AM #9
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Glad to hear you're on the road to better things. Congrats on SSDI.

Niko
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Old 09-17-2008, 11:21 AM #10
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Faith - I hope you are continuing to improve. I will keep you in my prayers.

Congrats on the SSDI!!! That is good news.
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