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#1 | |||
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Magnate
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Hi Natalie - a month after my DD #2 was born I hemorridged and ended up with a very low ferritin level - it was 2... I can't remember high much iron I was taking but I know it was a high amount to get my iron level up. (Note: this was almost 18 years ago) I was also put on a high iron level diet - Turkey is very high in Iron! Go figure!
I slept most of the time - and had no strength what so ever!! Keep us posted and good luck! ![]()
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Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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#2 | |||
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Magnate
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Good on you folks to get your blood tested.
Iron deficiency is all too common. Especially for females. Supplements are a good thing, but you definitely need to be speaking with a 'professional' when it comes to iron supplements. Too little is bad news, but too much can be harmful. Let us know how it goes for you hun!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#3 | ||
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Grand Magnate
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*raising hand*
I do I do...I am currently under treatment for iron deficiency. Happy to tell you everything I have learned from this experience. Mine is from heavy bleeding due to my periods although they did all the gastro tests (colonoscopy etc) to rule out GI bleeding. I guess the heavy periods are coming from that lovely perimenopause. I am guessing when I reach menopause my iron will get better on its own but for now it needs help. I also have an absorption problem. I think iron is supposed to be a large molecule and not easily absorbed. And as we age we all absorb less nutrients. So no matter how much iron enriched food I was eating I was not absorping enough of it naturally. I had some classic symptoms...pale, easily fatigued, racing heart upon exertion and frontal headaches, plus cold. And restless leg syndrome. My ferritin was 23 which was borderline. Basically over time I had blown through my stores and whatever iron was going in was bascially supporting me and going out with my periods. My endocrinologist said she wants my ferritin levels in the 50 to 60 level. They also did the following tests with the ferritin tests. Total iron Iron binding capacity % saturation You really need the above tests in conjunction with your ferritin level otherwise you are only looking at one piece of the pie. You may have low stores but how you use iron and your saturation could be fine. Another test that is specific to iron deficieny anemia is Transferrin And you should also have them test your folate and B12 because they can also show a type of anemia is too low. So, for a while no matter what I did my ferritin was 23-25 but my saturation levels were very very low like 10%. For the most part I had blown through my stores and my continued periods led to low saturation levels which meant my blood was not carrying enough oxygen. I tried the over the counter iron supplements but the gastro distress was terrible. Finally I found a once a day (that is the great part) iron supplement that I take. Its called REPLIVA and its prescription and I really do not have any gastro upset from it, either diarrhea or constipation. The great thing is it is once a day and it has vitamin C in it which aids in iron absorption. And I just got my latest test results back...giving you the current in black and the last set in red plus the ranges. Iron 87 45 range 40-175 TIBC 312 367 range 250-450 (please note with this test the higher the number the worse the result. % sat 28% 12% (very low was flagged) range 15-50 Ferritin 47 25 range 10-232 The above results are after 2 months on the iron treatment. If you do pursue iron treatment do it under a doctor's care because too much iron in high levels is dangerous. And I have to say also make sure they check your vitamin D status too, just in case. Hope this helps. |
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#4 | |||
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Elder Member
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Hello Natalie, I can not say anything from first hand but I took care of deb for a number of years, with same issues and hers, were at an extreme end, it can make you tired, big time, lucky for deb, they discovered what was wrong, See that's what they told deb too Shelley, heavy and she was, but it turned out she had pullets(Sp?) on her womanly parts, and had to have a total hyster. she didn't just have a few, her womanly parts weighed 4 times as much as they should, so by correcting her anemic issues it has helped deb out a lot, so hopefully yours wont go to extremes, and meds will be able to help you, I have learned it is not something you want to take lightly, I never even realized how serious and how troubling it could become
Shelley that is what prompted them to rethink her original dx, they were pumping iron in her through meds and herself through foods. and here readings were not good at all, even with the help of meds and foods, so, again Natalie i say prayers its is an easy fix, and you are feeling better soon ![]() ![]()
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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#5 | ||
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Grand Magnate
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Thanks Frank
![]() ![]() ![]() While my numbers have improved I am thinking about undergoing an endometrial ablation to eliminate the monthly bleeding. |
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"Thanks for this!" says: |
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#6 | |||
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Member
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DM Thanks for your reponse. The internet can be a dangerous place as far as medical info goes!! Self-diagnosis, though, is so much fun. So your gastro and PCP both thought a ferritin of 23 was okay? Honestly, I can't say I'm interested in taking iron supplements as I've heard they cause major gastro-intestinal problems. So I'm assuming you still are not taking iron anymore? Have you been re-tested?
yeahbut Wow, you were at a 2? ![]() Shelley Thanks so much for the VERY useful information. I guess I was just confused as to why the first test showed mildly low hemoglobin, hemocrit, and red blood cells and the second CBC 3 weeks later came back normal. I did get checked for folic acid and B-12. Folic acid was normal and B12 was 344 with a range of 250-1100. I remember a year ago my B12 was in the 600 something range. My vitamin D was very low at 17 last year when I was diagnosed. Got it up higher but she is checking that again (still waiting on result). Iron serum was 85 with range of 35-145 Total IBC was 299 with a range of 250-450 Unsaturated IBC was 214 with a range of 155-300 % saturation was 28 with range of 20-50 Ferritin was 20 with range of 10-220 So I guess just listen to my primary doc.? She did not suggest iron supplementation of any kind. Although she thought the ferritin and % saturation were not "generous." (whatever that means??!!) Oh yeah, I forgot I feel cold all the time. That's an iron deficiency symptom? hmmm... So you see an endocrinologist for anemia related stuff? I thought a hematologist or gastro was in order?? Frank Thanks for info on Deb. Hope she is doing okay.
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On Tysabri and love it. . |
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#7 | |||
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Magnate
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Dunno, but I certainly feel cold all the time as well. Cept when it's summer. But the last few nights here have been those of frost warnings (not at the freezing point, but close enough to!) and I've been 'cold to the bone' every day. Brrr!
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#8 | |||
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Member
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Frost?? I'd give anything for that. It's still 90 degrees here every day.
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On Tysabri and love it. . |
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"Thanks for this!" says: | dmplaura (09-22-2008) |
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#9 | |||
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Legendary
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Hey Franko?? Did you mean "polyps" instead of pullets? Just curious~
I think that's a good course of action, Natalie. Sounds like your Dr is on top of things. take care....
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DM . |
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#10 | ||
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Grand Magnate
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Quote:
I started with a gastro doc but everything checked out fine. My endo is really like my regular doc when it comes to blood tests because I see her for thyroid stuff. She was the one who noticed the low iron. After the gastro and knowing it could be from my periods I saw the GYN. We did a test where he put me on birth control pills and after two cycles my iron was fine. I have to say other than your ferritin level it does look like your other iron numbers are fine. Your saturation is good and your TIBC looks good. So maybe your stores are just a bit low. YOu can probably just use a multi vitamin that has a normal daily amount of iron and maybe you do not need to supplement with iron specifically. Natalie, your B12 is low despite what the range and the doc says. Outside the US anything below 500 or more is considered low. And that can cause pernicous anemia. Please read some of the B12 threads in the vitamin forum or PN forum. You will see that it is considered low. You want it close to 1000. Mrsd can help you. You should get some methyl B12 (not the cyano B12 - it does not absorb well. The methyl is better and try to get the sublingual tabs and you just put them under your tongue. I use one by Jarrow that is 3000mcg of B12 and has folate. After using it for a while mine is now 903 on the last test. Also do you take a b complex? B vitamins get depleted and we all need them for help in maintaining good liver function. |
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