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Old 10-24-2008, 09:44 AM #17
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lady_express_44 lady_express_44 is offline
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Quote:
Originally Posted by JoeMac View Post
Hi Cherie,

Yes they compared this MRI to the one I originally had at the beggining of the relapse, the thing that gets ME is that these symptoms went AWAY and now are back again with a slight twist, more numbness and less pain.......

Now to the pancreas, I have a surgeon set up for Nov 3rd appt, i am working on that at the same time as this....

Now the TOOTH, I have been on an antibiotic now for 3 doses, i take it every 6 hours and have to get the tooth pulled on Monday, I'll let you know on the outcome of the antibiotics.........so FAR no difference.

That is what my neuro said about the lesion being bigger she said there is nothing to be alarmed about right NOW. i DO know that she does not mess with Tysabri protocol and she won't go beyond the recommendations, lets hope I don't have antibodies.......

My life is going in TOO many directions right now Cherie, I am TRYING to take things one at a time but it is difficult.....I have some support here but they are not with me ALL the time so on my "down" times it is frustratiing me...

I will definately let you know when I start to FEEL better, so far right NOW I don't. I have an ultrasound coming up on the ppancreas so we will just go from there.....antibiotics for the tooth, antibody test at the lab and SSDI application all sent in and waiting on the outcome, all I CAN do is wait...

I am doing all that I can right NOW so it is time to WAIT I guess.......

Thanks Cherie

Joe
It doesn't sound like an all-on TM attack this time, but the spinal lesions are still doing something. It may be that this tooth infection has stirred up trouble with them.

Like I said, I ignored that tooth for a very long time, and the symptoms went on (to some degree, even on antibiotics) for as long as the infection did. It was only that I noticed I had more energy and wasn't feeling quite as bad on antibiotics that got me thinking about the tooth being the underlying problem. It was when the tooth was removed that the problems finally started to go away, but it didn't happen over-night either ... it took about 3 weeks, and I was left with some "permanent" damage. It's really only in retrospect that I can say that was the issue, because I have been fine since then (Apr/08).

Every TM attack I've had has started with infection of some sort. The first time it was a virus, the second an untreated UTI, and the third the tooth. The only difference this last time was that I was on LDN, so I think that helped me not get paralyzed, etc. like the other two times.

It's very possible that that lesion "growth" she is seeing now is from the last attack then, right?

One thing this disease teaches many of us is patience. When things finally do settle down for you, and hopefully for a long while, you will realize that you can survive just about anything on your own. In all honesty, even with the most loving and supportive network of friends and family, this disease is extremely lonely. Very few people can relate to what we are going through, and even less want to try.

That's why we have these forums.

Cherie
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