It's been a week since I saw my non-clinical trial neuro. I walked, sort of, out of her office with orders for 3 days of IVSM, a new rx for provigil, possibly an MRI, knowing I would have to wait for the IVSM to be approved by clinical trial doc.

It's been a week...of pure frustration. Unreturned phone calls. No information. And Sunday I woke up with a sore throat and now I have one of my quarterly (seems like) nasty head colds.

Today I emailed clinical trial docs nurse...told her I have a cold (which I am required to do per protocol and mentioned that local neuro had been trying to contact doc.) No response.

Call local doc and left message with nurse. He's a really nice guy, but yesterday he told me at 9:15 am that he would talk to doc and get right back to me. Today at 12:15, 27 hours later, nothing. I leave a message that says, this is my last phone call. I am sick, no one is returning my calls, no one cares that I am in pain and am sick. I am not calling anymore. Good bye. I did leave my name...probably didn't have to!

About an hour later, I get a phone call from him and he says that my doc talked to clinical trial doc....

MRI of brain from the trial shows no progression! GOOD NEWS!!! YEAH.
NO STEROIDS. Approved for MRI of the entire spine, w and w/o contrast. Start on Lyrica for leg pain.

Gee, last week, he didn't have the MRI of my brain. Excuse me...it wasn't available to me.

Picked up the Lyrica rx..expensive stuff even through Tricare!!! Yowsa!!
I ask the pharmacist about side effects. Drowsiness. Great. I am supposed to take 1 capsule 2-3 times a day....sure. If it causes drowsiness for normal people, it's likely to put me OUT! Also may cause blurry vision. Just what I need...already having problems seeing! Drowsy and blurry....hmmmm....how am I going to tell? That's my norm lately! LOL!

So, that's my week...hope everyone else is doing better than me!! Wanna buy some flowers?

HUGSSSSSSSSSSSS so many HUGSSSSSSSSSSSS

Lyrica made me too loopy feeling..I had to give it up...and now fighting wondering if need to give up neurontin...I say fighting cause the neurontin does wonders with my nerve pain...but I am always a pretty upbeat person...and I keep getting downer type ideas and moods...

anyhow..glad dr called back...sorry it took such a call to get a call back hugsss,sarah

AWWW Cheryl~ Not another cold!! Sorry to hear you're feeling yucko again. What a run a round w/the Dr's! I took Lyrica a couple of yrs ago, but didn't stay on it, as it made me dizzy. My Rheumy did tell me that alot of his pts that take it, do well w/it.

It's probably just like anything else; some people tolerate certain drugs better than others. Hope it helps and keep us posted. Flowers??? You shouldn't have!!

Take care friend.....

Aw Cheryl, I hope the Lyrica helps without a lot of side effects. I'm glad your brain MRI was good and I hope the ones of the spine will be good as well.

rats cheryl
sorry you're getting sick again. this just isn't right.

i'm on lyrica (from neurontin) and it's working better for me. no drowsiness and i take 4 a day. of course tho, nothing makes me tired.

it is good news that your mri was stable.
i hope whatever you have takes a hike soon.

in the meantime ..

Sounds like you kicked some Dr. butt!

Now we need to get rid of that cold!

May I offer you some chicken noodle soup?

gag* Watching FG through my covered eyes eat her soup!

Seroiusly...we must get you well!

Maybe you have been over doing it. You know...vacation and opening the new shop!

Take the drugs and rest!

I had some tomato soup and a toasted bagel. Drinking lots of water.

Took one capsule and drowsy is what it is making me! Judy I cannot believe you take 4 a day...I'd be sleeping all day long! I can barely keep my eyes open and it does cause blurry vision. There is no way I can take this stuff during the day.

I hate colds.

Tomato soup is good!

At Halloween you can pretend that you are drinking blood!



Did I just type that!



See? I am fatigued!

Off to look up neuro's #!

Awwww, Cheryl..bless your pea pickin heart..

Nooooooooo, not another cold..

Glad you got some answers......finally......

Take the lyrika for awhile...you need the rest anyway. Maybe your system will get used to it, after a week or so....I hope.

Take care..

Slaps on a HEPA mask and slides over and hugs you

I am sorry that your docs don't respond in a timely fashion!
Blast them with some spiny stems!

I am sorry you have another cold!
Curses on whoever gave it to you!

I am sorry you are once again the guinea pig for yet another med
You should publish all your findings when you get old!(er)

Now get away from me, you germ carrying harbinger of illness, you!!
...rapidly pumping the Germ-X bottle and slathering it all over me

Seriously Flygirl, I AM sorry to hear you are sick again. Please get some rest and get PODH to take care of you! You are working too hard and not taking enough time to rest and build up your defenses.

This is a bad time of year as far as colds and flu go, so remember to sanitize after touching anything in public and get thee a fan to flutter and block the nasty germs from reaching you when dealing with the public!

Ever notice on the news when they do a piece on Japan that lots of folks are wearing surgical masks? I wonder if we could start a fashion trend here??

Feel Better soon!