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Old 10-29-2008, 08:10 PM #1
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Okay...I will call the Dr.

I have other carp going on too!

Maybe it is a flare?

I love living in the "Land of Denial!"

Begging and whining....Do I have to leave?

Have I ever told you that I HATE MS?

Have I ever told you that I love and appreciate you guys?
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Old 10-30-2008, 08:01 AM #2
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Quote:
Originally Posted by Taffy View Post
Okay...I will call the Dr.

I have other carp going on too!

Maybe it is a flare?

I love living in the "Land of Denial!"

Begging and whining....Do I have to leave?

Have I ever told you that I HATE MS?

Have I ever told you that I love and appreciate you guys?

Yes, you have to leave deNile. It is a nice enough river if you aren't drowning in it!!

Now come along with me, Taffy into reality. It sucks, but maybe together we can face it.

I'm having issues trying to explain this carp to my Grandma because I have now had 3 specialists recommend that I do a 3 day IVSM and I just don't want to deal with the reality of explaining this to my Grandma and freaking her out!

However, I would like to have enough energy to deal with the holidays and enough brain power to pay my bills and be able to read OK again, too. So, I guess I'll quit trying to float down that stupid river, too.
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Old 10-30-2008, 08:43 AM #3
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wake up WAKE UP your not in your own house...Taffy wake up. ..hehe

sorry you feeling so worn out..hugssss...hoping a call to dr will help..either try the meds or see if flare hugssss sorry stuff going on....we love you, sarah
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Old 10-30-2008, 10:03 AM #4
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Quote:
Originally Posted by hollym View Post
Yes, you have to leave deNile. It is a nice enough river if you aren't drowning in it!!

Now come along with me, Taffy into reality. It sucks, but maybe together we can face it.

I'm having issues trying to explain this carp to my Grandma because I have now had 3 specialists recommend that I do a 3 day IVSM and I just don't want to deal with the reality of explaining this to my Grandma and freaking her out!

However, I would like to have enough energy to deal with the holidays and enough brain power to pay my bills and be able to read OK again, too. So, I guess I'll quit trying to float down that stupid river, too.
Holly....I will send CG over to explain things to you...

(yes, that was a threat!)

Explaining this to your Grandma....tell her it's energy via an IV to help you get better. Do you do your IVSM at home or at an infusion center? If you go to an infusion center, then you can hide the heplock so she won't see it. Just have them put it high enough on your arm. I usually have mine middle of lower arm so I can cover it up.

I hope it works.

As for Taffers....she lives close enough to me that I can fly over there in an hour and drag her butt to the doc....but I know she will do the right thing...she doesn't feel well.
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Old 10-30-2008, 01:25 PM #5
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Originally Posted by Av8rgirl View Post
Holly....I will send CG over to explain things to you...

(yes, that was a threat!)

Explaining this to your Grandma....tell her it's energy via an IV to help you get better. Do you do your IVSM at home or at an infusion center? If you go to an infusion center, then you can hide the heplock so she won't see it. Just have them put it high enough on your arm. I usually have mine middle of lower arm so I can cover it up.

I hope it works.

As for Taffers....she lives close enough to me that I can fly over there in an hour and drag her butt to the doc....but I know she will do the right thing...she doesn't feel well.

How about sending CG over just to amuse me? I usually do the IVSM at home and I really prefer it that way. I love my nurse. I was thinking of doing an infusion center just to hide it, but I don't know.

Well, maybe Taffy has already gone to the doc. I hope you are right that she will go.
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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Old 10-30-2008, 07:06 PM #6
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((((((oh taff))))

i'm sorry you're feeling bad. please don't wait to call the dr.
when you're feeling that bad and that down it's time to call.

i used to take provigil and it worked well for about 4 hrs.
but, i do well in the morning anyway. i get tired about 2 and by then it's too late to take it. so i don't take anything anymore for fatigue.

but i'm retired. so i listen to my body and when i have to i go to bed.
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Old 10-30-2008, 07:43 PM #7
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Originally Posted by hollym View Post
How about sending CG over just to amuse me? I usually do the IVSM at home and I really prefer it that way. I love my nurse. I was thinking of doing an infusion center just to hide it, but I don't know.

Well, maybe Taffy has already gone to the doc. I hope you are right that she will go.
I will go! I had the Halloween Parade to get through! So, we had ours on Thursday...I WILL call on Friday....I will..I will..I will...I will..I will. I will. I will .. I will.. I will......(I better or someone is gonna get some butt kick here...thinking...I wonder who?)
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Old 10-31-2008, 01:40 PM #8
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I don't have the debilitating MS fatigue, anymore, since I started LDN. I still get overtired, if I do to much, if it's hot and humid weather or am sick, but the ole MS fatigue is el-gono..

(((((((((Taffers))))))))
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Old 10-31-2008, 05:33 PM #9
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There.....I did it! (Getting outta the freak'n boat!) I called! Just like I would of told any of you! Now in a couple of weeks when I get in....
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