I take Provigil but not every day. And I break the 100 mg tabs in half. It's enough for me and the stuff is so expensive I want to conserve as much as I can. But....it's the best I've tried and....it takes away your appetite, too!

I tried Amantadine and it did NOTHING. I took Provigil and it really worked at first. Then, I did IVSM treatments and didn't need Provigil anymore for awhile. Then, when I tried Provigil again, it didn't work even in higher doses. Now, my neuro is looking at different options like ADHD drugs depending on the new neuropsych testing.

I'd say PRovigil is definitely worth a try, but maybe you are just in a flare, too. Maybe a little IVSM would help. Call your neuro since this is a new sx for you.

Amantadine! That's the one I couldn't remember the name of.

It didn't do anything for me either. At one point, I was taking Amantadine (2xday) and Provigil (1xday) and neither worked.


Niko

I do hope you're doing better, Taffy.




I'm tired of talking about fatigue.

Okay...I will call the Dr.

I have other carp going on too!

Maybe it is a flare?

I love living in the "Land of Denial!"

Begging and whining....Do I have to leave?

Have I ever told you that I HATE MS?

Have I ever told you that I love and appreciate you guys?

Yes, you have to leave deNile. It is a nice enough river if you aren't drowning in it!!

Now come along with me, Taffy into reality. It sucks, but maybe together we can face it.

I'm having issues trying to explain this carp to my Grandma because I have now had 3 specialists recommend that I do a 3 day IVSM and I just don't want to deal with the reality of explaining this to my Grandma and freaking her out!

However, I would like to have enough energy to deal with the holidays and enough brain power to pay my bills and be able to read OK again, too. So, I guess I'll quit trying to float down that stupid river, too.

wake up WAKE UP your not in your own house...Taffy wake up. ..hehe

sorry you feeling so worn out..hugssss...hoping a call to dr will help..either try the meds or see if flare hugssss sorry stuff going on....we love you, sarah

Holly....I will send CG over to explain things to you...

(yes, that was a threat!)

Explaining this to your Grandma....tell her it's energy via an IV to help you get better. Do you do your IVSM at home or at an infusion center? If you go to an infusion center, then you can hide the heplock so she won't see it. Just have them put it high enough on your arm. I usually have mine middle of lower arm so I can cover it up.

I hope it works.

As for Taffers....she lives close enough to me that I can fly over there in an hour and drag her butt to the doc....but I know she will do the right thing...she doesn't feel well.

Unusual fatigue is often the first sign of an attack for me.

Fatigue was my worst ongoing symptom for many years (except while in an attack, then I had much worse symptoms), but when I was in an attack, I had times where I slept 20 out of 24 hrs, for days on end.

My neuro is very much of the opinion that we should listen to our bodies, and SLEEP if that is what we need. She thinks this will help the healing process, and I agree with her.

Yes, it's hard to listen to our bodies, especially if we need to work or have small children, but I think it pays off in the longer run.

Cherie

How about sending CG over just to amuse me? I usually do the IVSM at home and I really prefer it that way. I love my nurse. I was thinking of doing an infusion center just to hide it, but I don't know.

Well, maybe Taffy has already gone to the doc. I hope you are right that she will go.