oh yeah we filled out the paperwork for the rebif while I was there he is saying no to the LDN for now because he wants to make sure he doesn't have to put me on anything for the pain if the steroids don't work and the LDN may block the pain meds. But he is not oppsed to the idea in the future if I am still interested. For now he likes rebif. he has seen better results than with copaxone but if I start having the negative effects he will switch me to C.

pizza tastes like rubber. I never knew an IV could leave a bad taste in your mouth.

IVSM? Oh heck yeah. Even the migraine medication I had left a HORRENDOUS taste in my mouth. Dreadful. Beyond words.
While the headache I had (following spinal) was enough to cause me to black out, the fear of the taste of the medication from the IV contributed to my panic

Horrible taste. eccchhhh I hate 'em but they sure do work. The lying around thing after an LP is right. I had mine the "week" of testing too and had to go the other tests despite knowing I should lying down. I tried at all the offices to tell them I needed a bed or bench while I was waiting and most of them where good with it. The nuclear med waiting room only after I blew chow, but then they took me seriously. Still all in all an awful experience good that it's done for in a quicker time. Take care of yourself and good luck with the bif.

lol ivsm indeed. and drinking water is completely out. tried that about puked again. Man, this sucks I don't know how you guys did it. I am ready to kill the next person that come near me with a needle.

HUGSSSSSSSSSSSS dear...good luck on the steroids..and hope they kick in some better days for you!! very big HUGSSSSSSSSSSSS, sarah

Gatorade. Gatorade helps. It tastes sort of like the IVSM anyway, so it's a great choice.

Cherie's right--REST!!

Hang in there. IVSM sucks too but it's better than what you're going through otherwise.

hello, rest is important, the roids will help, and maybe, seeing no one else mentioned it, make sure you can set docs appts up so you can go with a buddy, remember the buddy system when swimming, I went once with out Deb and regretted it, had a bad trip to the doctors, hope the roids work quickly and you feel better real soon

i'm sorry you're having such a rough time.
i'm also glad your dr got to see all your sx's and pain, even tho i wish it wasn't happening to you.

he sounds like he's doing all he can.
i hope the meds work for you and you get thru all this to feel better.

I'm so sorry for all you're going through. I'm only glad the lp is showing something, for all you've been through. Not that I want ya to be abnormal, but you know what I mean. I'm glad there's news.