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#1 | |||
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Magnate
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Quote:
While the headache I had (following spinal) was enough to cause me to black out, the fear of the taste of the medication from the IV contributed to my panic ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Gazelle (11-21-2008) |
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#2 | |||
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Member
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Horrible taste. eccchhhh I hate 'em but they sure do work. The lying around thing after an LP is right. I had mine the "week" of testing too and had to go the other tests despite knowing I should lying down. I tried at all the offices to tell them I needed a bed or bench while I was waiting and most of them where good with it. The nuclear med waiting room only after I blew chow, but then they took me seriously.
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Keith - dx'd 2/07 "Where's my Uranium PU36 Explosive Space Immune System Modulator?" rebif 3/07 - 12/07 relapse 2/08 copaxone 3/08 - 11/08 relapse 5/08 relapse 10/08 rebif 2/09 Minocycline 6/09 Not a damn thing 7/09 . |
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#3 | |||
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Magnate
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"Thanks for this!" says: | Gazelle (11-21-2008) |
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#4 | |||
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Magnate
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HUGSSSSSSSSSSSS dear...good luck on the steroids..and hope they kick in some better days for you!! very big HUGSSSSSSSSSSSS, sarah
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. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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#5 | |||
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Senior Member
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Gatorade. Gatorade helps. It tastes sort of like the IVSM anyway, so it's a great choice.
Cherie's right--REST!! Hang in there. IVSM sucks too but it's better than what you're going through otherwise.
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A Hairy Chicken Is Better Than A Hairy Hand! |
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"Thanks for this!" says: | weegot5kiz (11-21-2008) |
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#6 | |||
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Elder Member
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hello, rest is important, the roids will help, and maybe, seeing no one else mentioned it, make sure you can set docs appts up so you can go with a buddy, remember the buddy system when swimming, I went once with out Deb and regretted it, had a bad trip
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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"Thanks for this!" says: | ewizabeth (11-22-2008) |
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#7 | |||
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Grand Magnate
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i'm sorry you're having such a rough time.
i'm also glad your dr got to see all your sx's and pain, even tho i wish it wasn't happening to you. he sounds like he's doing all he can. i hope the meds work for you and you get thru all this to feel better.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | ewizabeth (11-22-2008) |
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#8 | |||
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Magnate
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I chewed gum throughout my IVSM experiences
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__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | weegot5kiz (11-22-2008) |
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#9 | |||
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Member
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Legzz - you are still SuperWoman in my book. What a trooper! Your sense of humor and positive outlook takes a very strong person.
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Brenda . Dx with RRMS 2/05 Avonex 3/05 LDN 11/08 |
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"Thanks for this!" says: | ewizabeth (11-22-2008), lady_express_44 (11-22-2008) |
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#10 | |||
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Magnate
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I'm so sorry for all you're going through. I'm only glad the lp is showing something, for all you've been through. Not that I want ya to be abnormal, but you know what I mean. I'm glad there's news.
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Anybody who doesn't think a dog can smile has never dropped a piece of bacon. |
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"Thanks for this!" says: | ewizabeth (11-22-2008), weegot5kiz (11-21-2008) |
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