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Chlamydia pneumoniae and its link to MS

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Old 07-28-2009, 09:55 AM #11
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There is an informal entirely non-authoritative way to get a hint about this. There hasn't been much discussion of antibotics at this site, how come? Ken

I take it you are an AB lover/user?? I do think that ABs help slow some types of MS, just not all types.

We need to learn more about what causes our individual MS, in order to find the proper treatment, don't you think?

Thanks for your input.
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Old 07-28-2009, 10:06 AM #12
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I had a terrible case of bronchitis (actually two cases back to back) in March before I was dx in October. While I know I had MS before this (had sx two years before but had no dx then) this could have been what brought it "out".

Don't you build up a resistance to abx if you take them continuously? What happens if you need them for an specific infection?

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Old 07-28-2009, 10:14 AM #13
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I had a terrible case of bronchitis (actually two cases back to back) in March before I was dx in October. While I know I had MS before this (had sx two years before but had no dx then) this could have been what brought it "out".
That's interesting. Have you suspected a bacterial component to your MS for a while?

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Don't you build up a resistance to abx if you take them continuously? What happens if you need them for an specific infection?
This may be the case with some abx, however, it has not been a problem for those on the Vanderbilt Antibiotic Protocol. Ken
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Old 07-28-2009, 10:33 AM #14
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I believe that a severe case of Mono that I had when I was 19 (1979) was what laid the groundwork for my MS. I had sx in 1987 (numbness & visual sx during pregnancy).....then nothing again until 2003 (both legs were numb for several weeks). Then in 2005 the big whammy......double vision that lasted nearly 6 months. That's when I got my dx. After the double vision cleared up I had Bells Palsy in the right side of my face.
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Old 07-28-2009, 10:54 AM #15
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I think as more neuroimmunologists are "trained" we may learn more about some factors that trigger MS. It is a fairly new "sub-specialty" and hopefully will prove to be beneficial to not only us MSers but many others as well.

I actually got to see one as part of a trial I was in. It was pretty interesting talking with him.
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Old 07-28-2009, 11:02 AM #16
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I think that PwMS, who think their MS was caused/triggered by a bio-illness, should try the AB treatment. If it helps, then you chose the right treatment.

If your MS was triggered by a virus, then some have found help with an anti viral med, such as Valtrex. I don't think Anti biotics will help here? Some people have found that Valtrex will halt an exacerbation.

I would love to hear from someone whose MS has been slowed, halted or cured by the long term. Vanderbilt Treatment.
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Old 07-28-2009, 11:12 AM #17
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I would love to hear from someone whose MS has been slowed, halted or cured by the long term. Vanderbilt Treatment.
Kim doesn't qualify under the Dr. Weiner definition of "personal cure" (3 years without new symptoms/disability), but she is half way there at 18 months with some symptom reversal.

I would be happy to explain anything I can about the protocol. Ken
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Old 07-28-2009, 08:13 PM #18
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We need to learn more about what causes our individual MS, in order to find the proper treatment, don't you think?
I completely agree with this! I read tons about CP when I was diagnosed and thought (and still think) it makes a lot of sense. That said, I believe that we did not all get here the same way, that there are more subtypes of what we presently call MS and as Sally indicated, that successful treatment might very well have to do with our own individual MS.

BTW, I also found a study regarding sinusitis and MS -- I thought it was strange that I was seeing so many people who were dxed after having respiratory illness.
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Old 07-28-2009, 09:09 PM #19
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Bearygood, have you done the NAC test? Ken
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Old 07-28-2009, 11:54 PM #20
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Ken, from what I read in this link, it seems to suggest that we would have been exposed at about the age of 11, and that each infection contributes to our progression.

Has Kim done the entire "schedule of treatment" protocol listed at this link, including all the vitamins and dietary changes?:

http://www.davidwheldon.co.uk/ms-treatment1.html

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