advertisement
Reply
 
Thread Tools Display Modes
Old 12-04-2008, 06:26 AM #11
Gazelle's Avatar
Gazelle Gazelle is offline
Senior Member
 
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Gazelle Gazelle is offline
Senior Member
Gazelle's Avatar
 
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Default

Quote:
Originally Posted by CayoKay View Post
hey, can you take the Fingolimod in ADDITION to the Cop?

hey, I'm so old I remember when it was called Cop1.

don't be un-easy, your dis-ease is in fine form, and we're here to celebrate the resurgence of your diseasement.
Not sure that you can. I don't know much about it yet because I haven't spoken to the study coordinator. I'll know more once I do.

Cop1, huh? I'm thinking that doesn't make you OLD, it just makes you aware of stuff to deal with this disease longer!


HK, Yeah, I wish more docs would actually HEAR what their patients are saying rather than listening only to what they want to hear. It would make everyone's life better.

Tkrik, it's a good feeling! It is so hard to get a doc where you feel comfortable with the relationship. I worked with too many docs in the hospital and have switched all my physicians to ones who have maintained their humanity.

Dimpled One, he must have been used to things like that because he pulled out a pair of dark glasses, never missed a stride, and kept asking questions. He's GOOD!

JoeMac, you are so right about that. I know I need humans with feelings and personalities as docs. He made me laugh when I explained why I didn't report increases in sx or new sx to my former docs unless they'd lasted for more than a week or two. I told him "I'm not a whiner." He looked at me and said drolly, "Good, then you can be my patient." And gave me a BIG smile. My kind of guy!

Cherie, thanks. It's a relief to finally have two docs agree, even if it IS 3 years apart. That part was just so frustrating to me.

I guess the best part is that this isn't a devastating discovery for me because I have been dealing with the likelihood that it was MS since 2003. And the dx in 2005 gave me mixed emotions even though I'd adjusted to the probability. This time, I just wanted to jump off the exam table and do a victory dance and spike a stethoscope! Life's crazy.

Thanks for "celebrating" with me!
__________________
A Hairy Chicken Is Better Than A Hairy Hand!
Gazelle is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (12-04-2008), hollym (12-04-2008), tkrik (12-04-2008)

advertisement
Old 12-04-2008, 08:53 AM #12
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default

I understand totally, Gazelle. I think I would do the victory dance for sure at this point if my neuro would firm things up for me. Unfortunately, having obvious brain damage and many white spots doesn't count if they aren't "typical".

BTW, my brain is definitely the one labeled "Abby Normal". It is abnormal for normal people and abnormal for MS. So many holes, but no pegs to fit in......
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CayoKay (12-04-2008), Gazelle (12-04-2008)
Old 12-04-2008, 11:24 AM #13
azoyizes's Avatar
azoyizes azoyizes is offline
Magnate
 
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
15 yr Member
azoyizes azoyizes is offline
Magnate
azoyizes's Avatar
 
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
15 yr Member
Default

Way to go! I'm glad you have a good, smart, doc with a sense of humor.

Good luck with the oral med.

I'm excited for you.
__________________
Mair


.
azoyizes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Gazelle (12-04-2008)
Old 12-04-2008, 11:32 AM #14
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

Glad you found a sensible doctor... You have to wonder, do the other doctors that try to change the diagnosis do it so they can order a bunch of tests to "look for other problems"?

Once I sort of hinted to my neuro that maybe I didn't have MS and you should have seen his expression... like he's thinking, oh, you definitely have MS.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CayoKay (12-04-2008), Gazelle (12-04-2008)
Old 12-04-2008, 11:55 AM #15
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Sorry you got the dx again but glad you don't have to fight anymore either.

I am excited about that oral medication. Whoohoo! You go Gaz!
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CayoKay (12-04-2008), Gazelle (12-04-2008)
Old 12-04-2008, 04:46 PM #16
Gazelle's Avatar
Gazelle Gazelle is offline
Senior Member
 
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Gazelle Gazelle is offline
Senior Member
Gazelle's Avatar
 
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Default

Quote:
Originally Posted by hollym View Post
It is abnormal for normal people and abnormal for MS. So many holes, but no pegs to fit in......
Ya want this guy's name? It'd give you an excuse to maybe come visit!

Quote:
Originally Posted by azoyizes View Post
I'm excited for you.
Quote:
Originally Posted by SandyC View Post
I am excited about that oral medication. Whoohoo! You go Gaz!
Thanks, I am too in a weird sort of way!


Quote:
Originally Posted by ewizabeth View Post
Glad you found a sensible doctor... You have to wonder, do the other doctors that try to change the diagnosis do it so they can order a bunch of tests to "look for other problems"?

Once I sort of hinted to my neuro that maybe I didn't have MS and you should have seen his expression... like he's thinking, oh, you definitely have MS.
Wiz, I know. Those things had been ruled out before. And when I went to the rheumatologist less than a month ago he ordered a lot of the same "rule out" tests AGAIN! Ugh... what, he didn't BELIEVE the tests from earlier this year? Sometimes you just throw your hands up in the air in frustration and submit because you know there's no other way out.


Oh boy.... that must have been a Kodak moment! Well, when you're stuck with the dx I guess you're stuck. At least he didn't give you the impression you needed a psych eval. Hey, there's a bonus behind MANY things in life if you only look.
__________________
A Hairy Chicken Is Better Than A Hairy Hand!
Gazelle is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (12-04-2008)
Old 12-04-2008, 05:03 PM #17
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

gazzie is buying maker's mark for everyone!
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CayoKay (12-04-2008), Gazelle (12-04-2008)
Old 12-04-2008, 07:38 PM #18
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Quote:
Originally Posted by Gazelle View Post
Dimpled One, he must have been used to things like that because he pulled out a pair of dark glasses, never missed a stride, and kept asking questions. He's GOOD!
Next time, pew pew him with magic missiles !
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CayoKay (12-04-2008), Gazelle (12-04-2008)
Old 12-04-2008, 07:56 PM #19
CayoKay's Avatar
CayoKay CayoKay is offline
Fabulous Belizean Member
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
CayoKay CayoKay is offline
Fabulous Belizean Member
CayoKay's Avatar
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
Default

Quote:
Originally Posted by hollym View Post
BTW, my brain is definitely the one labeled "Abby Normal"


DD-then-11 called me Abby for a YEAR after my first flare.

Dr. Frederick Frankenstein: Igor, would you mind telling me whose brain I did put in?
Igor: And you won't be angry?
Dr. Frederick Frankenstein: I will NOT be angry.
Igor: Abby someone.
Dr. Frederick Frankenstein: Abby someone. Abby who?
Igor: Abby Normal.
Dr. Frederick Frankenstein: Abby Normal?
Igor: I'm almost sure that was the name.


Holly, thanks for reminding me of that joyous nickname !!



welcome (back) to the Abby-Club, Gaz !!

__________________
And the trouble is... if you don't risk anything, you risk even more. - Erica Jong
CayoKay is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Gazelle (12-04-2008), Twinkletoes (12-04-2008)
Old 12-04-2008, 08:11 PM #20
CayoKay's Avatar
CayoKay CayoKay is offline
Fabulous Belizean Member
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
CayoKay CayoKay is offline
Fabulous Belizean Member
CayoKay's Avatar
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
Default

Quote:
Originally Posted by Gazelle View Post
Cop1, huh? I'm thinking that doesn't make you OLD, it just makes you aware of stuff to deal with this disease longer!
yep:

The original researchers named it Copolymer 1, the "1" indicating that it was the result of their first copolymerization reaction. Until 1996, the drug went through life as Copolymer 1, often shortened to Cop 1. Those familiar with the full name pronounced Cop as "cope"; others pronounced it as if talking about a police officer.

Teva, the firm which carried out the final steps of development of Cop 1 and filed a New Drug Application (NDA) for it, chose the trade name Copaxone®, which cleverly incorporated "Cop" and "one", as well as including the word "axon" as a reference to the nervous system and the place at which the drug produces its beneficial action.


http://molinterv.aspetjournals.org/c...ent/full/4/1/6

I remember first hearing about Cop1 at a Sacramento MS Society seminar in 1992.
__________________
And the trouble is... if you don't risk anything, you risk even more. - Erica Jong
CayoKay is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
on being newly diseased FluteMaker Social Chat 18 10-30-2008 09:53 AM
DBS...How brain pacemakers erase diseased messages Stitcher Parkinson's Disease 0 06-02-2007 11:35 PM
DBS...How brain pacemakers erase diseased messages Stitcher Parkinson's Disease 2 05-30-2007 06:17 PM
Diseased Brain Cells Involved In ALS Motor Neuron Death BobbyB ALS 0 04-15-2007 12:56 PM


All times are GMT -5. The time now is 12:08 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.