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12-04-2008, 06:26 AM | #11 | |||
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Cop1, huh? I'm thinking that doesn't make you OLD, it just makes you aware of stuff to deal with this disease longer! HK, Yeah, I wish more docs would actually HEAR what their patients are saying rather than listening only to what they want to hear. It would make everyone's life better. Tkrik, it's a good feeling! It is so hard to get a doc where you feel comfortable with the relationship. I worked with too many docs in the hospital and have switched all my physicians to ones who have maintained their humanity. Dimpled One, he must have been used to things like that because he pulled out a pair of dark glasses, never missed a stride, and kept asking questions. He's GOOD! JoeMac, you are so right about that. I know I need humans with feelings and personalities as docs. He made me laugh when I explained why I didn't report increases in sx or new sx to my former docs unless they'd lasted for more than a week or two. I told him "I'm not a whiner." He looked at me and said drolly, "Good, then you can be my patient." And gave me a BIG smile. My kind of guy! Cherie, thanks. It's a relief to finally have two docs agree, even if it IS 3 years apart. That part was just so frustrating to me. I guess the best part is that this isn't a devastating discovery for me because I have been dealing with the likelihood that it was MS since 2003. And the dx in 2005 gave me mixed emotions even though I'd adjusted to the probability. This time, I just wanted to jump off the exam table and do a victory dance and spike a stethoscope! Life's crazy. Thanks for "celebrating" with me!
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A Hairy Chicken Is Better Than A Hairy Hand! |
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12-04-2008, 08:53 AM | #12 | |||
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Senior Member
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I understand totally, Gazelle. I think I would do the victory dance for sure at this point if my neuro would firm things up for me. Unfortunately, having obvious brain damage and many white spots doesn't count if they aren't "typical".
BTW, my brain is definitely the one labeled "Abby Normal". It is abnormal for normal people and abnormal for MS. So many holes, but no pegs to fit in......
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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12-04-2008, 11:24 AM | #13 | |||
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Magnate
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Way to go! I'm glad you have a good, smart, doc with a sense of humor.
Good luck with the oral med. I'm excited for you.
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"Thanks for this!" says: | Gazelle (12-04-2008) |
12-04-2008, 11:32 AM | #14 | |||
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Elder
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Glad you found a sensible doctor... You have to wonder, do the other doctors that try to change the diagnosis do it so they can order a bunch of tests to "look for other problems"?
Once I sort of hinted to my neuro that maybe I didn't have MS and you should have seen his expression... like he's thinking, oh, you definitely have MS.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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12-04-2008, 11:55 AM | #15 | |||
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Wise Elder
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Sorry you got the dx again but glad you don't have to fight anymore either.
I am excited about that oral medication. Whoohoo! You go Gaz!
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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12-04-2008, 04:46 PM | #16 | |||
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Senior Member
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Thanks, I am too in a weird sort of way! Quote:
Oh boy.... that must have been a Kodak moment! Well, when you're stuck with the dx I guess you're stuck. At least he didn't give you the impression you needed a psych eval. Hey, there's a bonus behind MANY things in life if you only look.
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A Hairy Chicken Is Better Than A Hairy Hand! |
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"Thanks for this!" says: | ewizabeth (12-04-2008) |
12-04-2008, 05:03 PM | #17 | |||
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Elder
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gazzie is buying maker's mark for everyone!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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12-04-2008, 07:38 PM | #18 | |||
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Magnate
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Next time, pew pew him with magic missiles !
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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12-04-2008, 07:56 PM | #19 | |||
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Fabulous Belizean Member
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DD-then-11 called me Abby for a YEAR after my first flare. Dr. Frederick Frankenstein: Igor, would you mind telling me whose brain I did put in? Igor: And you won't be angry? Dr. Frederick Frankenstein: I will NOT be angry. Igor: Abby someone. Dr. Frederick Frankenstein: Abby someone. Abby who? Igor: Abby Normal. Dr. Frederick Frankenstein: Abby Normal? Igor: I'm almost sure that was the name. Holly, thanks for reminding me of that joyous nickname !! welcome (back) to the Abby-Club, Gaz !!
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"Thanks for this!" says: | Gazelle (12-04-2008), Twinkletoes (12-04-2008) |
12-04-2008, 08:11 PM | #20 | |||
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Fabulous Belizean Member
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The original researchers named it Copolymer 1, the "1" indicating that it was the result of their first copolymerization reaction. Until 1996, the drug went through life as Copolymer 1, often shortened to Cop 1. Those familiar with the full name pronounced Cop as "cope"; others pronounced it as if talking about a police officer. Teva, the firm which carried out the final steps of development of Cop 1 and filed a New Drug Application (NDA) for it, chose the trade name Copaxone®, which cleverly incorporated "Cop" and "one", as well as including the word "axon" as a reference to the nervous system and the place at which the drug produces its beneficial action. http://molinterv.aspetjournals.org/c...ent/full/4/1/6 I remember first hearing about Cop1 at a Sacramento MS Society seminar in 1992.
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