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#1 | |||
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Member
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I was on Copaxone for 6 weeks and had too many systemic side effects including incredible anxiety and jitteriness. I felt slightly agitated all the time. I kept waiting for the side effects to go away. I finally gave it up when it made my brain so mushy and flaky that I backed out of the garage and took the passenger side window off of the car. Ergh!!
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On Tysabri and love it. . |
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"Thanks for this!" says: |
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#2 | |||
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Wisest Elder Ever
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I didn't do well on C but it wasn't because of the side effects so much as the fact I showed progression on my MRI while on it.
But......the injection from C caused so many site reactions and they were very uncomfortable so I was anxious all the time while on it....I knew I had to do it each day so I was not looking forward to it....which can cause b*tchiness. Thank goodness for LDN - no side effects except a nice, calm feeling.......... ![]()
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | CayoKay (12-14-2008), tovaxin_lab_rat (12-12-2008) |
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#3 | |||
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Magnate
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Wow, I'm the abnormal dream queen now, and prior to beginning Copaxone, it was rare for me to even recall my dreams.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | CayoKay (12-14-2008), tovaxin_lab_rat (12-12-2008) |
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#4 | |||
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Wise Elder
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Me too! While I have always been able to remember my dreams, which were "normal" kinds of dreams, since starting C they are sometimes bizarre!
![]() ![]() As for the irritability, I don't know the answer to that as the cause could be the C, the 'roids, part of the flare you are in, etc. Whatever the cause is, it is bothersome to you and I would talk to your neuro about it. |
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"Thanks for this!" says: |
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#5 | |||
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Magnate
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I don't know but I think MS does! I was told last night I have been on the bi*&hy train for about a week now!
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"Thanks for this!" says: | CayoKay (12-12-2008) |
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#6 | |||
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Grand Magnate
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Agree with talking to neuro about it.
![]() I got a "high" after taking the shot for the first 3 months. Made me a little giddy (had to switch shots from night to morning because of this), so I guess it's possible there's a chance for the opposite end of the spectrum. My Neuro wasn't sure if this was caused by the C or by the flare I was in when I started, but it did go away. Hope things get better for ya! ![]() ![]()
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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"Thanks for this!" says: |
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#7 | |||
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Elder
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Hi Deb,
I never had that side effect from Copaxone but I really did from steroids. DH hopes I never have to take them again (same here). ![]() I agree that you should let the neuro know. Do you take an anti-depressant? I had to start taking one not long after being dx with RRMS and I've been on one since then. Feel better soon... ![]()
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#8 | |||
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Fabulous Belizean Member
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Quote:
lately, I'm tense, irritable, anxious, not sleeping well, achy, and grumpy. I attribute that to LIFE with MS (plus menopause), just being what it is, with frustrations, annoyances, spazzes, pains, and exhaustion. ![]()
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And the trouble is... if you don't risk anything, you risk even more. - Erica Jong |
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#9 | |||
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Elder
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I have had anxiety for many years, and had it well controlled, until...I started Copaxone. I had MASSIVE anxiety attacks during the first three months. it was awful. I was so panicked at shot time. Waiting for this one to be the IPIR. As time passed, the anxiety has softened. My dreams have calmed, and things are in a better groove. It was a rough first year, and adjusting to this stuff was enough to make me sit and suck my thumb in the corner. With time, and patience your body can adjust, and regain many of the normal habits and patterns that you were used to before Copaxone. If you are having tons of trouble, please see your MD. If its interfering with your life, then you may need half doses for a bit till you get adjusted. DONT do it without approval and guidance from your MD.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#10 | |||
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Elder Member
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I agree legs its the MS and all the meds, i give a whole new meaning to the letters P M S
Deb I hope you become less of a...... lol (just razzin you) I hope you feel better real soon ![]()
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . Last edited by weegot5kiz; 12-14-2008 at 06:37 PM. |
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