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Old 12-12-2008, 01:01 AM #1
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I was on Copaxone for 6 weeks and had too many systemic side effects including incredible anxiety and jitteriness. I felt slightly agitated all the time. I kept waiting for the side effects to go away. I finally gave it up when it made my brain so mushy and flaky that I backed out of the garage and took the passenger side window off of the car. Ergh!!
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Old 12-12-2008, 06:07 AM #2
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I didn't do well on C but it wasn't because of the side effects so much as the fact I showed progression on my MRI while on it.

But......the injection from C caused so many site reactions and they were very uncomfortable so I was anxious all the time while on it....I knew I had to do it each day so I was not looking forward to it....which can cause b*tchiness. Thank goodness for LDN - no side effects except a nice, calm feeling..........
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Old 12-12-2008, 06:29 AM #3
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Wow, I'm the abnormal dream queen now, and prior to beginning Copaxone, it was rare for me to even recall my dreams.
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Old 12-12-2008, 08:51 AM #4
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Quote:
Originally Posted by dmplaura View Post
Wow, I'm the abnormal dream queen now,
Me too! While I have always been able to remember my dreams, which were "normal" kinds of dreams, since starting C they are sometimes bizarre! And, I can't recall all of them like I used to, I just vaguely remember them being really weird.

As for the irritability, I don't know the answer to that as the cause could be the C, the 'roids, part of the flare you are in, etc. Whatever the cause is, it is bothersome to you and I would talk to your neuro about it.
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Old 12-12-2008, 08:59 AM #5
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I don't know but I think MS does! I was told last night I have been on the bi*&hy train for about a week now!
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Old 12-12-2008, 09:12 AM #6
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Agree with talking to neuro about it.

I got a "high" after taking the shot for the first 3 months. Made me a little giddy (had to switch shots from night to morning because of this), so I guess it's possible there's a chance for the opposite end of the spectrum.

My Neuro wasn't sure if this was caused by the C or by the flare I was in when I started, but it did go away. Hope things get better for ya!
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Old 12-12-2008, 09:52 AM #7
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Hi Deb,

I never had that side effect from Copaxone but I really did from steroids. DH hopes I never have to take them again (same here).

I agree that you should let the neuro know. Do you take an anti-depressant? I had to start taking one not long after being dx with RRMS and I've been on one since then.

Feel better soon...
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Old 12-14-2008, 06:37 AM #8
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Quote:
Originally Posted by legzzalot View Post
I don't know but I think MS does! I was told last night I have been on the bi*&hy train for about a week now!
well, I can't blame the Copaxone for my b*&chiness... since I stopped taking it at the beginning of 2005, due to site reactions, and doctor's advisement, since I turned SPMS.

lately, I'm tense, irritable, anxious, not sleeping well, achy, and grumpy.

I attribute that to LIFE with MS (plus menopause), just being what it is, with frustrations, annoyances, spazzes, pains, and exhaustion.

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Old 12-14-2008, 09:52 AM #9
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I have had anxiety for many years, and had it well controlled, until...I started Copaxone. I had MASSIVE anxiety attacks during the first three months. it was awful. I was so panicked at shot time. Waiting for this one to be the IPIR. As time passed, the anxiety has softened. My dreams have calmed, and things are in a better groove. It was a rough first year, and adjusting to this stuff was enough to make me sit and suck my thumb in the corner. With time, and patience your body can adjust, and regain many of the normal habits and patterns that you were used to before Copaxone. If you are having tons of trouble, please see your MD. If its interfering with your life, then you may need half doses for a bit till you get adjusted. DONT do it without approval and guidance from your MD.
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Old 12-14-2008, 05:59 PM #10
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I agree legs its the MS and all the meds, i give a whole new meaning to the letters P M S

Deb I hope you become less of a...... lol (just razzin you) I hope you feel better real soon
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