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#1 | |||
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Magnate
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Ok so the insurance company flat out refuses to pay for the Rebif my doc prescribed. We filed an appeal and that too was denied because I have not tried Copax or Avonex. So my choices are to continue to fight them and still no meds or to choose between the two that we had already ruled out.
Doc is suggesting I try one of the meds the insurance will cover. Any suggestions anyone?
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. I am not spoiled! |
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#2 | |||
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Wisest Elder Ever
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How about LDN? It costs about $15-20 per month and no shots!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#3 | |||
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Grand Magnate
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For me, Avonex wasn't a choice because it was an IM shot. Yep - I'm a needle wimp.
![]() I'm on Copax. It's sub-Q like rebif, but it's an every day shot. Took me awhile, but now it's on the routine list like brushing teeth. It's also not an interferon like the other DMD's. Some docs prefer to leave it in reserve as the secondary med to try before Tysabri. Whichever you decide to do, I wish you luck. I'm so sorry to hear the ins. co. is being this way. ![]()
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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"Thanks for this!" says: | CayoKay (12-20-2008) |
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#4 | |||
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Elder
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It was explained to me that Copaxone doesn't cause the fatigue and flu-like sxs that the interferons do...and that it actually crosses the blood-brain barrier, which the interferons don't.
I do inject every day, but I use the autoject, so it's easy as pie, once you get used to it. It does become part of your daily routine.
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | CayoKay (12-20-2008) |
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#5 | ||
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Senior Member
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Everyone is different so I think its kind of a "lets start here and see what gives" type thing.
![]() I've done great on Copaxone for 4 years. Is it the med or just remission? Who knows but I'm not changing a thing for now. Personally in my mind I do feel that being on a dmd is a very proactive move and maybe just feeling positive has an effect, don't know. Good luck with whichever you pick and remember you can always switch.
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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#6 | |||
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Elder
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I've taken both, and I think I'd chose Avonex for the convenience, because eventually you get used to the harpoon. I was only slightly sick one day a week...
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | CayoKay (12-20-2008) |
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#7 | |||
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Grand Magnate
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personally, i chose copaxone.
i have a hx of depression and we didn't want to chance that worsening on an interferon. i also didn't want to chance the flu-like sx's and not feeling well. i already feel carpy everyday. so i traded a daily shot for not having any reactions. i use the autoject so it's automatic. you just get used to the routine. so far i've been fairly stable. my mri's have been stable too. it can take up to 8 mos for C to work in the CNS. guess it needs to build up in your body. i'm happy with it.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | CayoKay (12-20-2008) |
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#8 | |||
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Magnate
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Been over 6 months now on Copaxone, pointing and shooting daily.
You get used to it quickly. I manually inject (tried the autoinjector and disliked it), but I'm a needle wimp for bigger needles and I've seen the Avonex needle... NOTHANKSLOL!!!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#9 | |||
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In Remembrance
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I've been on both. Of the two, I woUld say Avonex worked better for the MS but I couldn't take the sx.....and Copaxone didn't work for me but it was a cinch to shoot it, after Avonex..
![]() Good luck.. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#10 | |||
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Grand Magnate
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I haven't tried either, so I don't have an informed opinion on either of the drugs . . . but if you had your hopes up on Rebif, why not try Avonex to see how you do on the SAME med at a lower dosage?
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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