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How do you stay positive about all of this?

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Old 12-23-2008, 01:12 PM #1
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Originally Posted by legzzalot View Post
We all have those days! Hell I am having one of those months...well, come to think of it one of those years! I am getting ready to go back for another round of IVSM since the one we did before Thanksgiving is wearing off and now I have more Sx.


I'll tell you a secret... Chocolate, Red wine and a punching bag. Sometimes you just need to cry and sometimes you just need to scream. Then there are times when you just need to punch the **** out of something! And follow with your favorite chocolates and a glass of wine. It works wonders.... unless the steroids make everything taste like rubber. Then you just have to double up on the punching bag.
I guess that is what I wanted to hear, that it is okay to be mad and to cry. I feel like I'm failing because I can't be happy and positive during this, I feel like I should be stronger and I'm really just a weak, pathetic version of my real self right now.

I've been on the oral steroids for 8 days now, and the last 2 days my sx are worse. My tongue is almost completely numb and I can feel the side of my face numbing more and more.

Thanks for talking to me....
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Please let me be the person my dog thinks I am.

My dog is not my whole life... she makes my life whole.
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"Thanks for this!" says:
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Old 12-26-2008, 05:18 PM #2
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Originally Posted by Blondi View Post
I guess that is what I wanted to hear, that it is okay to be mad and to cry. I feel like I'm failing because I can't be happy and positive during this, I feel like I should be stronger and I'm really just a weak, pathetic version of my real self right now.

I've been on the oral steroids for 8 days now, and the last 2 days my sx are worse. My tongue is almost completely numb and I can feel the side of my face numbing more and more.

Thanks for talking to me....
Yeah, I get mad. I don't usually cry. But, sometimes. I cry when I talk to Shared Solutions about how much I hate Copaxone and its side effects. I cry when I light into my DH for treating me differently sometimes, like I don't have a brain and can't make my own adult decisions. When I am not in a flare, I function pretty normally. But, he finds it difficult to get out of his hyper-vigilant stage sometimes. He's been better lately.

I get mad more often than I cry. And I feel sorry for myself when I have to go on disability. Or, when I am about to take a part time job that doesn't pay much over minimum wage. I think I'll enjoy the job, but if I had options comparable to what I've had in the past, I'd make different choices.

I get mad when I have flares and hospitalizations (2 in 2008 -- I spent 4 weeks out my year in the hospital. Almost missed my DD's HS graduation.)

I with I could respond more positively. But, this year has been yuck. I don't have much positive to say.

Sorry. This is just not the direction that I pictured my life going at age 46.

~ Faith
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Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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Old 12-30-2008, 09:17 AM #3
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PPMS, didn`t buy it but I am stuck with it anyway, I can still look at the top of the grass instead of the roots so I am good!

Stuff happens, had a lot off friends and family that didn`t make it this far, still get to see the DW and kids every day so?

LOL I like a challenge?
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Old 12-30-2008, 09:47 AM #4
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. . .
Stuff happens, had a lot off friends and family that didn`t make it this far, still get to see the DW and kids every day so?

Stuff happens. A good reminder. I used to say, "MS is just my stuff. Everybody has stuff." But, I've been less positive lately. But, yeah. Stuff happens.

~ Faith
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Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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Old 12-30-2008, 04:19 PM #5
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sending you hugs. I am right thar with ya. Cry, kick, scream, yell, let it out, then pick up your bags and move on to the next stop.
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