Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Still Baffled by pain

Reply
 
Thread Tools Display Modes
Old 01-15-2009, 11:16 AM #1
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
  
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default
Quote:
Originally Posted by braingonebad View Post
Here's my story, and you know I'm no expert but I've been down a similar road.

My pain doc says there is no point in one steroid shot for nerve pain - so did my last pain doc. They are meant to be given in pairs. ESIs, Facet joints, and nerve blocks, all my current doc, would one, two weeks apart.

He did not flinch when I told him my first EMG - left hand - was normal, and my recent one - left arm and leg, were normal as well. He says that happens. Hard to detect a lot of stuff by EMG.

I only saw one neuro surgeon, who said pretty much the opposite - that shots were very little use - which I found to be so not true, they work wonders for me. And that EMGs pick up everything. Also not true, I'm certainly not imagining this pain and loss of use.



I'm not saying you are wrong to trust this dr, just consider the source. His tool is a hammer, your problem is a nail.

I have seen very few people *fixed* by surgery, especially where C spines are involved - go ask in the spinal forum. Please do attempt every other means of addressing this less invasively, and resort to surgery only as a last option.

And you know I'm saying this as a friend.
Thanks Cathy! The neurosurgeon is not the one who is recommending surgery. He is very conservative. I am waiting for the EMG which is today, and then HE will evaluate all the test results.

Trust me, surgery is going to be the LAST resort (if at all), not the first. The ortho doc (they're the ones who like to cut) is the one who is suggesting surgery. He's the new guy on the team. The neurosurgeon is the one I trust. He's the good guy.

As for steroid shots...well, I will probably have another one in 2 weeks.

__________________
Cheryl
Dx: MS 2001 CRPS 2009
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
soxmom (01-15-2009), tkrik (01-16-2009)
Old 01-15-2009, 12:07 PM #2
soxmom soxmom is offline
Magnate
  
Join Date: Jan 2008
Location: massachusetts
Posts: 2,740
15 yr Member
soxmom soxmom is offline
Magnate
 
Join Date: Jan 2008
Location: massachusetts
Posts: 2,740
15 yr Member
Default
this stinks. hang in there cheryl
__________________
sox
.

.
soxmom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (01-15-2009)
Old 01-15-2009, 09:32 PM #3
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
  
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default
I had the EMG done today, oh what fun! According to the neurologist that performed the test, it was normal. However, he says that's not unusual. Of course it's not!

They like to torture patients for the fun of it! And does this hurt? Oh sorry, I'll stick the pin here! Oh that hurts! I'll move it over here! Oh, sorry that hurts too! Geez, what do they think? Sticking a sharp pin in your deltoid muscle ISN'T GOING TO HURT! Here let me try!

__________________
Cheryl
Dx: MS 2001 CRPS 2009
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (01-15-2009), weegot5kiz (01-16-2009)
Old 01-15-2009, 11:53 PM #4
RedPenguins's Avatar
RedPenguins RedPenguins is offline
Member
  
Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
RedPenguins RedPenguins is offline
Member
RedPenguins's Avatar
 
Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
Default
Yuck...I've never had one of those tests...and don't plan on it! Sorry it was icky. Are you still having any relief from the shots?

Just wanted to say - this thread has almost 2000 views to it! Wow! Everyone loves you!

~Keri
RedPenguins is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (01-16-2009), weegot5kiz (01-16-2009)
Old 01-16-2009, 10:57 AM #5
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
  
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default
Hang in there FG! I know that you will make the best decision for you and the outcome will be just fine.

DBF has been suffering from a similar pain for about a month now. However, being a man, he won't go to the dr. I'm pretty sure that he thinks it will magically disappear.

Have you considered trying acupuncture? Years ago (2003) I got desperate, asked my PCP about it, and decided to try one recommended by my PCP. This particular guy was an MD, acupuncturist, as well as trained in manipulation therapy. For the 1st time in years (since 1997), I was totally out of pain and all those wonderful endorphins that were released were great. Even going in to this as a BIG skeptic, I found that it helped with the pain I was intermittently going through (I now know that it is the MS hug).

Of course, this was just my experience with it. Everyone is different. I did stop going as he really believed in spinal manipulation and it was causing me pain in my spine that wasn't there before. I talked to my PCP about it and he told me that because I have bone spurs in my spine, I should never have my spine manipulated.

I then went to physical therapy and started on Neurontin.

Again, hang in there Cheryl and know I have been keeping you in my prayers.
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (01-16-2009), weegot5kiz (01-16-2009)
Old 01-16-2009, 11:09 AM #6
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
  
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default
emg's are no fun I literally lifted off the table,

'oh did that one hurt?"

duh what was the first clue me landing back on the table with a ceiling tile in my possession

wish they had found a nerve blocked, sorry they didnt, I was leaning towards a pinched nerve, so now what?

Sorry about the pains still FG
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (01-16-2009), tovaxin_lab_rat (01-16-2009)
Old 01-16-2009, 12:14 PM #7
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
Quote:
Originally Posted by weegot5kiz View Post
'oh did that one hurt?" duh what was the first clue me landing back on the table with a ceiling tile in my possession
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (01-16-2009), weegot5kiz (01-18-2009)
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
hi..we've baffled our doctors jinadean73 New Member Introductions 9 02-22-2008 10:50 AM
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE GJZH Chronic Pain 0 10-02-2007 08:23 PM
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE GJZH Spinal Disorders & Back Pain 0 10-02-2007 08:22 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-26-2006 06:35 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Chronic Pain 0 10-26-2006 03:35 PM


All times are GMT -5. The time now is 01:13 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home