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Old 01-13-2009, 12:51 AM #1
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I would be thrilled if some doctor came along and said he was sure I didn't have MS..But then, and this may sound crazy, I'd be more worried about my future than I am now, because if it isn't MS, what could it be? Oh, why can't there be something easy about this freakin' disease?
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Old 01-13-2009, 06:05 AM #2
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That's exactly what I was saying! If a doctor said I didn't really have MS, would I end up with something worse? Or end up in eternal limbo, unable to work, feeling lousy, and saying to my friends and family "Yes, I'm really sick, but no, they don't know what's wrong with me."

I already spent a couple of years lying there at night crying and thinking "What is WRONG with me? Am I nuts?" I'd sure hate to go back to that.
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Old 01-13-2009, 08:26 AM #3
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Right, when they tell you it's all in your head and that you need to see a psychiatrist, you doubt yourself and the fact that your body is telling you that there is definitely something wrong. It does make you cry, and it does make you think maybe you are a little nuts.

Even after nearly 20 years with a diagnosis, I still find myself wondering at times if this is really what they say it is. But, most of the time, in my heart and in my head (!), I know it's MS.
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Old 01-13-2009, 09:13 AM #4
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I have never doubted myself I have always been a very positive person, until they started telling me to see a shrink, I started to question myself and what if I am nuts ok nuttier,

my darling wife never lost faith in me she knew something was wrong with me, she saw my decline in energy and stability, i even told her i am gonna get Parkinson cause my left arm shook, my vision was going and the test showed little to no need for glasses back in 06 by 07 bi focals

the doubt the docs created in me cause they had no answer was wrong, now someone should of, somewhere after 32 ER visits, figured it out why did it take my first ON attack to make them think harder and find it, even my GP knew it was something more but was boggled guess cause I am a guy thats part of it, and was a pretty healthy person in good shape and all, except for the 4 constant SX's i kept having, that was one docs excuse was i am a guy they never suspected it, I for one am pretty sure assuming any thing medically can be a very dangerous way to think and practice medicine
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Old 01-13-2009, 02:21 PM #5
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Quote:
Originally Posted by PolarExpress View Post
I would be thrilled if some doctor came along and said he was sure I didn't have MS..But then, and this may sound crazy, I'd be more worried about my future than I am now, because if it isn't MS, what could it be? Oh, why can't there be something easy about this freakin' disease?
I agree, Polar.

It sounds like this guy IS determining the cause of the patient's medical issues (stroke, migraines, etc.), although he doesn't say if he has for ALL the patients he undx.

Frankly, I'd take many dx over MS . . . but not all, for sure.

Cherie
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Old 01-13-2009, 10:29 PM #6
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Quote:
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Frankly, I'd take many dx over MS . . . but not all, for sure.

Cherie
Me, too..I call hangnail!
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Old 01-14-2009, 02:40 AM #7
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Quote:
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Me, too..I call hangnail!
I'll claim the toenail fungus! (mostly because I took care of that two weeks ago..and it's finally healing very nicely)
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Old 01-20-2009, 08:28 AM #8
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WOW I understand he is a big specia;ist but the numbers that he re diagnosed seems insanely high. I wonder if any sought a second oppinion from other MS Specialist

Itust seems strange to me that he rediagnised so many usually you hear the people are back in limbo not given a diffrent diagnosis/ Iso wonder what he would tell me. My lp did not rule it in or out right now i cant remeber the term

Sorry but i find his numbers quite high if all these people went thru all the testing. I was not diagnosed quickly it was over a 4 year period. I wonder the percentages of other MS specialists telling people they dont have MS

Good luck toall.
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Old 01-20-2009, 08:53 AM #9
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can I have dandruff instead? I can fix that!
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Old 01-21-2009, 04:02 PM #10
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Wow, just a couple of months ago I wondered aloud to my MS neuro if I really had MS (since I feel so much better after being on Tysabri). He looked at me and said, oh you definitely have MS.

He trained at Mayo in Rochester so I feel confident in his opinion, plus I've had the symptoms in virtually every part of my body at one time or another.

Interesting article though, and we wonder why so many doctors are hesitant to dx MS.
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