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01-15-2009, 11:17 AM
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Deb --
Sounds like you're doing a lot of what I'm doing. My site reactions/pain have been so bad, that I've come up with my own site rotation and frequency schedule. Shared Solutions can't recommend it, because it's not their protocol, but I plan to speak with my MS Specialist about it next week. Injections in any site, other than my abdomen, ache for 3 days, like a tetanus shot. I just am not willing to hurt that much. So, I inject only in my abdomen, and only 4 days per week, because I don't want to invite lypo-atrophy. I sincerely hope that my doc allows me to continue on Copaxone, doing it my way. I believe that it is likely working. I had a UTI last month. In the past, those have always triggered a major flare, even when I've caught and treated them early. This time, it did not. I did not like any of the other med options that she gave me at my last visit. Most were research studies, that involved the possibility of being on a placebo, which I am not willing to risk. I think that one involved IV's, which I don't do well with; my veins are hard to find. Again, best wishes. Please let us know how it goes. ~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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