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Old 06-28-2009, 12:02 AM #271
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I have to put my meds in a little Monday - Sunday pill dispenser. I hated buying it but soon got over that once I realized that I didn't have to worry about missing or duplicating a dose.

I've never forgotten to take my LDN. Now, my thyroid or HBP meds are another story. Thyroid must be taken first thing in the AM and for some reason I just cannot seem to remember to do that. I finally put my HBP med with my LDN and take those at night.

I've been tempted to not take my LDN for a couple of nights just to see what the effect would be on me but I'm too chicken!! I don't want to go back to the way I felt "pre-LDN"!!
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Old 06-28-2009, 06:42 AM #272
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Other than that, Cherie, I have been doing really well. The heat knocks me out now and then, but that is to be expected. My cataract surgery will be on Tuesday, so I have been really careful with my diet and exercise. I did take my LDN last night, and the pain with movement has let up a bit. I guess it’ll take a few days to catch up with all the benefits.

Thanks for asking.
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Old 06-28-2009, 11:51 AM #273
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I loves my LDN...
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Old 06-30-2009, 11:12 AM #274
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There's a lady I know, a mother from my daughter's ball team, and she had gotten a rx for LDN months ago from her neuro. She decided to try naturalpathic options first for about 6 months (combined with Rebif), and when those didn't seem to help, she went with the LDN (+Rebif).

Lately I've heard of a number of people using the interferons with LDN, but I know that Dr B didn't recommend it. They did that small 2007 trial in San Fran that didn't seem to indicate a contradiction, so maybe that's why some doctors (and hence myself as well) are thinking it might be ok.

She started out at 1.5mg because she is very sensitive to most meds, and has other very troubling (maybe MS-related) health issues; bowels, stomach, bladder, etc.

The first thing she noticed is that her tongue was tingling, and of course that made her nervous. I suggested it might be the "awakening of nerves", but she was afraid it was an allergic reaction (she is on liquid, no fillers). Then she noticed the spasticity increase, and that made her afraid she was headed into an attack. Due to the mouth reaction, I suggested she cut down to .5mg to start because if it was an allergic reaction, she should continue to get that reaction even on a smaller dose.

My pharmacy checked into allergic reactions to Naltrexone, and found absolutely nothing on that if the drug is PURE naltrexone. The tingling in her mouth stopped, but the spasticity/weakness continued. In the end, she decided to go off LDN for a bit and see what happened when that occurred. Nothing much changed for the worse or better, except the same spasticity/weakness.

She contacted Skip and he advised she should not use Rebif while on LDN. I was actually a little surprised that is still the recommendation, given the short/small trial that showed there appeared to be no safety issue. Also, so many neuro's seem to be rxing it to those on interferons now, and most seem to be still getting benefit from LDN with that combo.

Anyway, this wasn't a success story, YET anyway (she is going off Rebif in the new year and wants to try LDN again), but I wanted to post it because it is a reminder that:

- maybe interferons shouldn't be used with LDN
- people need to be aware that side-effects or "awakening" may occur in the early days/weeks, but not to be too frightened of that
- ultimately LDN might not work out so well with some patients

Cherie
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Old 06-30-2009, 11:27 AM #275
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If I were going to try LDN I'd go off all Interferon medications first. That's just me. I didn't have a good experience with Interferons and won't go back on them again. Ever.

I would think that you really couldn't tell if LDN worked for you or not when combining it with Interferons.
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Old 07-08-2009, 05:02 AM #276
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How is everyone doing? This thread got so quiet...............
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Old 07-08-2009, 05:45 AM #277
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I have finally recovered from missing my LDN dose for two nights in a row. It is amazing how fast the symptoms come back. I am also recovering from my cataract surgery, which gave me a really rough time. I had an inflamitory response to something used in the procedure within my eye after the first surgery. Two additional surgeries later I am feeling, if not seeing, better. I am told that my vision will improve with time. It better, because right now I can’t see out of that eye worth you-know-what. It has been a rough week or so. Next week I will attend a weeklong photography workshop. If that doesn’t kill me, I don’t know what will. I’m going to try to take it slow and easy. That should keep me out of trouble for a while.
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Old 07-08-2009, 11:00 AM #278
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I'm doing hunky peachy, Kell, thanks for asking.

Sorry about the eye troubles, Marion, but glad you are back up - on LDN..

I have a question? I know we've talked about healing from an injury or illness sooner, with LDN. I just looked at an injury on my hand that was sore and bleeding one day and healed over the next day.. That was lightening speed. And another thing I've been noticing is, that my moles that had been on my body for years, are disappearing.

I didn't notice this so much in the beginning with LDN, but I've been on it for over six years now and I am seeing more of this healing stuff.

On the other hand, I still have Psyoriosis on the palms of my hands, although much better this year than it has ever been.

Has anyone else noticed these miraculous healings??
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Old 07-08-2009, 11:17 AM #279
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Sally, I have noticed healing faster from cuts and minor injuries (scrapes, burns). I haven't noticed any moles disappearing but I haven't been on LDN as long as you have. I got a paper cut on my finger (yowch!) and it had almost healed completely 2 days later.

The one thing that has always been consistent for me while taking LDN is that my hair and nails grow like crazy! I've never had such strong, long nails in my life! And my hair is thicker and grows much faster (not necessarily a great thing but, oh well....).
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Old 07-08-2009, 11:50 AM #280
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Oh yeah, the hair and nails thing. I keep my hair on the short side (easier to take care of) and I have to trim it constantly, it seems....my bangs keep growing over my eyes... I try to keep my nails shorter too and that seems almost impossible..

At my age, especially, this seems unreal..
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