Hope you got your scooter fixed, Sally.

Nothing new here. Still on the same 4.5 mg. dose of LDN.

I have my semi-annual Neuro appointment tomorrow. He will do the standard "tests", run his keys down the bottom of my foot and check my eyes. Tell me I need to be on Betaseron and say "see you in six months"!

I’ve been doing rather well. The hot weather is losing its grip on me, and I’m trying to convince myself that fall is the perfect time for me to redouble my efforts to take better care of myself.

With all the stress (in-laws dying) of this past summer behind me I have a renewed sense of accomplishment. Gerry is a painting contractor, and this time of year he is really busy, so I have stepped up to handle the details of my in-law’s estate. I haven’t felt this useful in a very long time.

And I have another new project. I’m very excited. When we built our house fifteen years ago we had to take down a lovely but rickety, 100-year-old barn because it was too close to the property line. Now Gerry and I will be replacing that barn with – drum roll – a new barn!



It’ll be my job to make sure it gets done properly. I’ll probably bore you with updates, so be forewarned.

Thanks for the great update, Marion..

Okay I'll try this again. I couldn't get on the last few days.

Marion, I love that barn, it is great. It's also huge. Are you putting your cars in there? Enjoy supervising your new project.

Jappy, that is awful. I'd kick that neuro to the curb. "Don't bother", how can a doctor say that? Does he mean if you got another MS problem he would not treat you because you are on LDN?

Eddie, just keep on exercising, that will help increase your endorphins. Maybe not as well as LDN will do though. My mood is always great since I am on LDN.

Sally, what you are experiencing sounds more like being overwhelmed. That is something we can't help, I get that too. When too many problems/issues hit us at once only fixing the problems or forgetting about them, if minor ones, will help us. I hope things start looking up for you.

Kitty, how was your Neuro appointment? Anything new?-a good one I hope.

With the heat and humidity, I have been so hot even in A/C I still have those burning legs and feet that never seems to go away. I don't sweat so I get red in the face and put cold water on myself very often.

I am so happy the weather is cooling off. Whew! I get out to see family and do some stores now. Sleeping is great with the windows open. Ah, fresh air.

My appointment went well. Nothing new. He was impressed with how quickly I recovered from my bout of ON from back in February. He checked my eyes and said they looked really good. My balance has been better and he even commented on the fact that I could stand with my feet together and hands out and not fall over. Of course, I only stood there maybe five seconds.....but I didn't waver! He was impressed with my weight loss and said whatever I've been doing to keep it up. Oh, and he said "see you in six months"!

Lady,

The “barn” is a two-car garage with additional storage both next to where the cars go, plus upstairs on the second floor. We don’t intend to use it as a garage. It’ll be for storage. Finally we’ll have no house painting ladders or scaffolding piled up somewhere in our yard!

Since we converted our attached two-car garage into a physical therapy room with a swim spa pool, we figured that adding a two-car garage to the property will increase its value. Plus we are going to put solar on the south-facing side of the roof, which will help heat our hot water and the water in the swim spa. These days our electric bill is out of this world, and we really could use some relief from that.

To me the coolest part is that we’re going to have a weathervaine on top of the cupola (that thingie on the roof).

so i have been MIA again... ( sorry i know i said i'd be on here more ) but here is my LDN update...

I am rolling up on 2yrs now of LDN.. still no new Sx or exacerbations. and my neuro said and i quote: " that stuff will never work." pfft.. sometimes i wonder about her when the proof is right in front of her that indeed it does work for some MSers...

anypoop.. i have been feeling pretty OK.. i mean i have had some old Sx show up with heat and humidity but noting that lasts for more then a few min or if i really over do it i have to sit in the A/C for 15min or so to cool down then i am right back to "my" normal.

still my biggest complaint with LDN is the surge of energy. and lack of a normal sleep pattern anymore.. ( not really a bad thing but i only get about 4hrs of sleep a night, then have to take a 2hr nap later in the day to get my normal 6hrs) but that is the worst side effect ( if you can call it that) that i have had in the last 2yrs...

I am going to go get an MRI probably in November just to see if it is indeed slowing the monster down.. I have not had one since before i started LDN.. so i hope i have something to make my neuro think about.. and ya know what even if there are some new lesions.. i don't care because i feel good.. and ill take that over flu Sx any day. i know some may not agree with that but its cool we all have our own way of smacking our monster into submission..

ok i am out all
-Andrew

Just an update from me. I saw my Neuro, I'm doing well she said. I have some new pain from banging my head and neck so she said to up the LDN from 3 mg to 4.5 for the pain.

Yikes! She is a believer, but the PCP gives it to me. She said it has helped me so much over the almost two years, and to keep it up.

Like I would ever stop it. Duh! That's my good news.

Hi

I don't have ms but suffer a lot of neuropathy and cramping and twitching pain. Stabbing shooting pain.
No diagnosis yet

Has ldn helped anyone wiyh neurpathy

Thanku
Tulips

I really don't know, Tulip, but I would imagine it does. I have known people with both MS an Neuropathy to use LDN.

Why don't you ask this question in the Neuropathy Forum, here at NT.

Good Wishes to you..