awsome on the full day, kitty! its always great to get more done than you thought you would. it almost leave me feeling like a person without MS

Hi all! I've been mia more often than not lately. I'm stuck on 3 mg of ldn. I get really cranky on 4.5, argh!! But.....dh is on 4.5 for Crohn's and he's doing great!

I'll jump in with the same thoughts as you Flutemaker. When I get a real good day, and accomplish more than I realized I could do, and without a nap, I forget I have MS too. I almost feel normal again too.

It feels so good to get my "To-Do" list done in one day. I am full of energy most days, with just a few days now and then when I only get a little bit done.

I find the weather has a lot to do with it too. On cold, damp, rainy days I get kind of mopey and want to nap. Then I don't sleep as well at night. I try to avoid a nap so I can get my zzzzzzz's.

I am still on 3.0 mg of LDN. I haven't tried to increase it. I don't want to mess with a good thing.

It's great to hear that everyone is doing so well.

Lady, that's a HUGE accomplishment, and I'm so happy it's worked out for you too. For people who are fairly new to this disease, I think we might take the benefit for granted a little, or even perhaps doubt that LDN has made the difference (sometimes), but when you've had the disease a long time, you KNOW when it's working for you.

I agree with Sally though, that it would have been nice to get started earlier. I was in denial for a long time ... so even if I had heard of it sooner, I wouldn't have thought my life would be affected as much as it has.

I can live like this though.

Chere

Funny you should mention your other disease, Ulcerative Colitis. Well not funny really, but interesting I must say.

I have another auto-immune disease, that is somewhat rare, and was told I was born with it. It is Collagenous Colitis. Biopsy colon confirmed.

LDN has stopped all my symptoms of this, thus the pain is gone too. It is not caused by being nervous or upset. It just is.


http://www.gihealth.com/html/educati...usColitis.html

thats where im feeling real lucky, that i got on the LDN so early.one thing that still kills me is the LDN was available when my mother was alive and we knew nothing of it. and when i think of just how quick she went down hill.......

someone up there may like me afterall

I know you were concerned about starting on LDN because of other complications you have, but maybe that was allergies/sensitivities. I have a lot too, but LDN has been so.... simple.

My best friend got lung cancer, and began chemo. I kept trying to tell her to try LDN, but she was nervous. The cancer came back and she died within two weeks that time. Before she did though, she got ahold of Dr B, and was meant to be having a phone consultation on Monday. She died on Sunday.

Her husband always sends everyone that he runs into with cancer or MS to talk to me now. One of the last things she said to me is that she regretted she never gave it a try.

Of course there are no guarantees, but I wish she would have tried too.

Cherie

How are you doing on 3.0mg, Joellelee? If that works for you, it's ample anyway . . . so stick to what works.

I used liquid and adjusted up in from 3.0 mg to 4.5 mg, in .5 mg increments. You can mix it with distilled water and try that, if you think you might get some benefit from going up slower. (I can go up 1.5mg at a time now, and I adjust it up and down that much every fall . . . but the first time I didn't adjust as easily.)

I'm really curious about your hubby too. I know he was trying other meds and not doing so well last year. Is he still on other meds or just LDN? When did he start on LDN? Has it stopped his "attacks"? Doesn't your son have Crohn's too?

It has worked extremely well for my Ulcerative Colitis too ....

Cherie

II'm no better but i'm no worse, that's a good thing. I already spoke with the pharmacist about upping my dosage in small increments. I'm gonna try it soon. My dh is also on Asacol and 10 mg of prednisone for the time being.

My 18 year old son does have Crohn's too. He's on Mercaptapurine and has been doing very well.

I just want to add that my 22 year old son is showing some symptoms of a gastro nature now too . He is vomiting about once a week for no reason, he has horrible bouts of heartburn like pain, he's getting ulcers in the back of his mouth. He does not want to go the gastroenterologist. I certainly understand why. I tried to explain it's not necessarily Crohn's but he is very reluctant after the he!! his dad brother have been through.

I'm trying very hard not to show how terrified I am. He still lives with us so I will just make the appt. And drag his skinny butt to the doctor.

No worse is great, Joelle, especially with all the stress you have had lately.