advertisement
Reply
 
Thread Tools Display Modes
Old 01-18-2009, 01:00 PM #11
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

It's the main reason summers are so hard for me. Whenever I get overheated I get blurry vision, lightheaded and start to walk like I'm drunk (ok....worse than I already do ). If it gets really bad my vision will double. Since we have "summer" nine months out of the year here it's a pain in the you-know-where.

I was reading something I wrote in my youngest son's baby book back in 1987 (nearly 22 years ago!). I was about eight months pregnant and wrote that my vision kept going double or getting very blurry whenever I'd get into a hot car. This was in June! I also wrote that I was very "tipsy" at times and my legs felt like jello. Now....I was pregnant with a 10# baby so I attributed alot of it to that. Makes me wonder just how long I've had MS.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (01-18-2009), lady_express_44 (01-19-2009), weegot5kiz (01-18-2009)

advertisement
Old 01-18-2009, 03:38 PM #12
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Quote:
Originally Posted by Kitty View Post
It's the main reason summers are so hard for me. Whenever I get overheated I get blurry vision, lightheaded and start to walk like I'm drunk (ok....worse than I already do ). If it gets really bad my vision will double.
The vision is what happens to me in warmer weather. Not fun!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
lady_express_44 (01-19-2009), weegot5kiz (01-18-2009)
Old 01-18-2009, 08:03 PM #13
Jalee Jalee is offline
Junior Member
 
Join Date: May 2007
Location: Florida
Posts: 43
15 yr Member
Jalee Jalee is offline
Junior Member
 
Join Date: May 2007
Location: Florida
Posts: 43
15 yr Member
Default

Mine has changed since diagnosis. At first, it affected my eyes, but I had an attack of ON in the right, then left eye. Vision would get blurry until I cooled off.

Later, it didn't bother by eyes, but my legs, instead. My legs would become shaky and weak.

Tracking the pattern over the past few years, I've found that the parts of my body affected most recently by MS are the places where the heat bothers it the most. It is most often weakness which happens until I'm cool.
Jalee is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
lady_express_44 (01-19-2009), tovaxin_lab_rat (01-18-2009), weegot5kiz (01-18-2009)
Old 01-19-2009, 02:19 AM #14
TheSleeper's Avatar
TheSleeper TheSleeper is offline
Member
 
Join Date: Jan 2008
Location: About 35 miles southwest of Cleveland Ohio
Posts: 499
15 yr Member
TheSleeper TheSleeper is offline
Member
TheSleeper's Avatar
 
Join Date: Jan 2008
Location: About 35 miles southwest of Cleveland Ohio
Posts: 499
15 yr Member
Default

Cherie, I haven`t taken a shower that most people would call warm in almost 5 years, my wife wonders how I can stand the cool temperature of the water. Any kind of heat messes me up. Hot dish water, sitting near the wood burner, opening the stove to get stuff out.

I even sleep with out covers most of the time. Never needed or had air conditioning in the house until this. No real vision problems but my legs and strength just disappear with heat.
__________________
ditched the witch
.
TheSleeper is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
lady_express_44 (01-19-2009), tovaxin_lab_rat (01-19-2009)
Old 01-19-2009, 10:53 AM #15
braingonebad's Avatar
braingonebad braingonebad is offline
Magnate
 
Join Date: Jan 2008
Location: NW Ohio
Posts: 2,450
15 yr Member
braingonebad braingonebad is offline
Magnate
braingonebad's Avatar
 
Join Date: Jan 2008
Location: NW Ohio
Posts: 2,450
15 yr Member
Default

A friend and I went to a lecture (and I'm using lecture because I cannot remember the real word I want here...) on ms a few years back.

One of the speakers advised to use an OTC fever reducer, your choice, whenever you might have an increase in body temp. The theory was, if the med would keep the temp down due to illness, it should do the same if you're doing a little exercise or whatever.

I'm sure drinking plenty of fluids - good and cold - would help more if it's hot outside. But the whole Advil before shopping thing does seem to help me. I have less fatigue and can finish what has to be done.

I feel the same, btw about the heat. It flares up some of my sx, like my balance is off, my vision is blurry, but at least it's not painful. I'd rather look drunk than grumpy from pain. This time of year, even if I'm warm, my body knows it's cold somewhere.
__________________
Anybody who doesn't think a dog can smile has never dropped a piece of bacon.
braingonebad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
lady_express_44 (01-19-2009)
Old 01-19-2009, 12:37 PM #16
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by Jalee View Post
Mine has changed since diagnosis. At first, it affected my eyes, but I had an attack of ON in the right, then left eye. Vision would get blurry until I cooled off.

Later, it didn't bother by eyes, but my legs, instead. My legs would become shaky and weak.
Interesting. For me it was the weakness/numbness for the first several years that this was a problem, and now it is my eyes (too). Glad to hear that it can change though. Thanks!

Quote:
Originally Posted by TheSleeper View Post
Cherie, I haven`t taken a shower that most people would call warm in almost 5 years, my wife wonders how I can stand the cool temperature of the water. Any kind of heat messes me up. Hot dish water, sitting near the wood burner, opening the stove to get stuff out.

I even sleep with out covers most of the time. Never needed or had air conditioning in the house until this. No real vision problems but my legs and strength just disappear with heat.
I know my heat problem has fluctuated over the years, and even during a season. I might have no other symptoms (not in an attack), but I can do poorly with heat for weeks, then have very little problem for a long while.

Like I said though, I don't mind turning to jello (or even losing my eyesight) so long as there is no pain. For that reason I will stay in a hot shower or sit in front of a fire to warm up, rather than ache with spasticity from the cold. So far the heat doesn't completely incapacitate me, but if it did, I wouldn't like that!

Quote:
Originally Posted by braingonebad View Post
One of the speakers advised to use an OTC fever reducer, your choice, whenever you might have an increase in body temp. The theory was, if the med would keep the temp down due to illness, it should do the same if you're doing a little exercise or whatever.

I'm sure drinking plenty of fluids - good and cold - would help more if it's hot outside. But the whole Advil before shopping thing does seem to help me. I have less fatigue and can finish what has to be done.
Now that is a very interesting approach!! I am going to try an Advil before I do physical exercise next time, to see if that works for my eyesight.

What a great idea, bgb. I'll let y'all know if it helps with that particular symtom.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 01-19-2009, 03:15 PM #17
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Default

Hi, Cherie! Mine did but I don't know that I'm a great example since mine was a residual from ON only. It would actually be more accurate to say it subsided rather than disappeared but more often than not it's unnoticeable.
Bearygood is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
weegot5kiz (01-19-2009)
Old 01-25-2009, 09:16 AM #18
laurasari laurasari is offline
Junior Member
 
Join Date: Sep 2008
Posts: 48
15 yr Member
laurasari laurasari is offline
Junior Member
 
Join Date: Sep 2008
Posts: 48
15 yr Member
Default

I know for me once my body cools down things go back to what they were. Drinking alot and keeping cool keeps it awa. Neuro always tells me stay cool.

Good luck

laurie f
laurasari is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Article about Uhthoff's tovaxin_lab_rat Multiple Sclerosis 0 03-22-2008 03:15 PM
One and ONLY symptom?? Cowcntry Peripheral Neuropathy 29 03-02-2008 09:23 PM
My PC has a symptom rd42 Parkinson's Disease 9 02-24-2008 08:51 PM
Symptom of RSD, TOS or neither????? wildberry2277 Reflex Sympathetic Dystrophy (RSD and CRPS) 1 08-10-2007 11:28 PM
Is this a symptom of TOS, anyone? MelissaLH Thoracic Outlet Syndrome 3 06-30-2007 05:39 PM


All times are GMT -5. The time now is 01:40 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.