I'm glad he has finally fessed up, and has given you the confirmation you deserve. I know it's not nice (even shocking) to hear at first, but at least you know for sure what MonSter you are reckoning with . . .

So I guess this means a discussion is in order to get you on a DMD to help manage your number of attacks better? You've had SO many steroid treatments, which probably isn't the best plan of attack. Steroids can be good after the fact, but it would be nice to avoid as many attacks as possible by using a more preventative therapy.

I know you've been dealing with all of this for a long time, YB, but getting confirmation always brings a flurry of emotions to the surface. Hope you get in to see him soon to go over your options and move onto a new phase.

Cherie

Yabbit I'm so pleased you found a nice neuro. Don't we all wish we could have one like that???!!

You've been through so much over the time since I 'met' you, that I'm sure a diagnosis of any kind must be a relief off your mind. I know it was for me.

My neuro wrote a letter to my GP saying how surprisingly composd I was when given the MS Dx. Had he known what had been going through my head, he'd not thought it surprising at all. I truly thought I had a brain tumour!

I'm glad the subject has been opened up for you. It should be easier now that you can talk about it.

...............

Cherie, are you a doctor?

No, I am medically retired.

I don't even do the DMD's myself, and never have . . . but I think MOST people believe that trying them is our best course of action.

From your previous postings, you have been on steroids several times this past year or two, which means you are having lots of relapses and are theoretically at more risk for accumulating "permanent" damage during each one. Since the primary goal of the DMD's is to hopefully reduce the number of relapses, most people consider their options ASAP in that regard.

I don't (personally) buy into that, but I care enough about others to suggest that they might want to discuss this with their doctors to make their own personal decisions.

What has that got to do with whether I am a doctor though?

Cherie

Char, still praying for you and hoping things work out.

Cherie, she asked you that because you are posting replies as if you are a doctor. I personally stray away from giving medical advice even though I have 20+ years of experience and knowledge of ms and have worked 13+ years in the field. I don't ever want to be responsible for someone taking medical advice from me, a "laymanish" person even if I had good intentions. Besides, I don't have the piece of paper to do so.

Seriously, do you want me to dig through everyone’s posts here to show how often someone offers a medical “suggestion” on here (and every other MS forum)? “Cut the pill in ½”, “try exercising for that spasticity”, “be sure to taper off to that med”, “most people start out with a low dosage”, etc.

And, on almost every posting to the “newly dx”, someone pops in to say that it is worthwhile to discuss the DMD’s with their doctor, ESPECIALLY if the person is having a ton of relapses.

Give me a break! I don’t even do the DMD’s, but they are mainstream gold standard for MS. That approach is common sense for anyone who has been dealing with this disease, NOT medical advice.

Cherie

I simply gave you some insight as to why you were asked if you were a doctor. I too can pull up many threads where you have been involved with "virtual altercations" with members on who's right and who's wrong.

Sometimes a member just wants to vent or put something out there. Relax. Don't take this where it doesn't need to go.

If you have any further comments to me personally bring it up in a PM not on Char's thread.

It is just my style and character to try to offer helpful input (PLUS hugs, condolences, etc.), but if someone finds that offensive, I agree that it should be taken to PM.

Thanks for trying to shed some light into the question that was asked of me, Sandy.

YB, please feel free to PM me if I upset you in any way.

Cherie