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#21 | |||
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Magnate
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Good luck dearest!
![]() I was going to mention the tattoos, but I figured I'd leave that one up to you to bring up here ![]() Now that we're here, maybe you can share some pictures of them! I've always been intrigued about your tats! ![]() April = wickedcoolgirl btw everyone ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#22 | |||
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Thanks for that endorsement, Laura! I'll get my husband to download a picture of my backpiece--I don't know how!
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"Thanks for this!" says: | dmplaura (02-18-2009) |
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#23 | |||
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Magnate
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Quote:
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#24 | |||
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Grand Magnate
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![]() Did you happen to remember to turn out the lights before you left? Glad to have you aboard! Been wondering how you're doing. You're off Avonex? How are you doing with that? Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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#25 | |||
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Hi Cherie!
I'm really glad you're here. I learned a lot from your posts at that other place. After I stopped Avonex, I had a wonderful burst of energy for awhile. I threw a party, cooked every day, baked lots of cakes and bread, I was Superwoman. That didn't last long. A few weeks ago I lost my ability to pee and had to get catheterized. Both feet went numb, my tremors got worse, and I was exhausted--just getting my mail tired me out. My bladder is now working as it should, and I can feel my feet. But my tremors are getting extremely bad now, and I have insomnia, L'Hermittes, and I can't cool off, even though it's 15 degrees outside. I feel pretty lousy. My doc ordered two weeks of bedrest, and I took 5 days. I'm also feeling a little guilty for not doing anything to help my disease, but I know I shouldn't feel like that. I eat very well, but I smoke. I'm also losing weight. Since I was 14 I've maintained at 98 pounds, and today I'm down to 92, which is not good at all. Bearygood told me to look into MS and Malabsorption, and it seems to fit me like a glove. I called my doctor and told him about it so we can investigate when I see him in a few weeks. He's very open minded, so that's something. I'll be getting back on it when I can afford my 3,000.00 deductible, but until then, I'm not quite sure what to do. It's been an interesting month to say the least! April |
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#26 | ||
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Just to clarify re: malabsorption, just a possible theory that could be part of the puzzle -- if it does hold true for you, hard to know if it's the chicken or the egg! And it could be a separate issue entirely but I do believe with MS, so many things can be intertwined. I hope you get to the bottom of this, April! We can't have you waste away to nothing and I'm concerned! There's got to be SOME reason this is going on!
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